Doctor called got my voice mail,

Jen x rays don't look good. You have to go to Ortho. Keep zach limited mobilty. We are thinking of a cast. Please email me with an update on how he is.

Talk to you soon.

Doctor G


What I am thinking...... I do not what to do summer in a cast....we need to swim......why the hell didn't I move to a lower lever?
OMG I have been letting Zach walk! I am in a visicous cycle of guilt and revocovery to motivation to bad news..... numb........to guilt...... to motivated......to bad news......... numb. Ok, just fight for a brace that comes off and then worry about cycle later.

Damn you salizar! ( anyone know where this saying comes from?)

It's that day again. I am trying to be in the now. Fit my healthy lifstyle into this hospital situatioin.
I really just want it over and to be having a good summer.

I see the surgeon and he is the man I need to talk too. I have two appointments Thurs. and one on Friday.

I hope I get sleep tonight. I am so tired and I want to be sharp when I talk to the docs.

Hospital Day........ We have three appointments and it will be a long day. Got the new wheel chair just in time.

hmmmmm was I freaking out yesterday in anticipation of their scrutiny??

ALso..... Zach isn't doing well. rrrrrrr He's not breaking through the pain medication he is not having pain episodes and hurting himself. This is a huge improvement. HUGE.

He just has no energy. It scares me to see him so weak. I am struggeling to read about the mitochondrial disorders.
There isn't much out there and most of it is written for a genius reader..... ( need I say more?)
I am guessing he is having a growth spurt and it uses all of his rescources ( cell energy) and so he's exhausted from growing.
I am pushing juice and soda on him so we've stayed off the IVS...... HUGE improvement...... : )

For the record I love these doctors and Childrens hospital. I used to hate those scenes in movies where they gush all over the doctor ........ they are still cheesey but I do get it now...... I really do!

I am confident Zach's blood test will be good and then he'll get a flu shot.... and then a toy......