What it all means......

When I took Zach for his EEG it was video monitored. There was some activity that was caught on tape. It is common for kids like zach to develope seizures aroung the on set of puberty. Needless to say this is upsetting. Mostly, becuase my brother died of a prolonged seizure when he was 15 years old. So, It worries me greatly.

So I gear up for this new problem. Hmmm first I think I should booze it up and write bad poetry and then gear up for this......it's only fair to take some time to roll in the dirt.


RIght?

THE GOOD NEWS IS SOMETHING SHOWED UP ON THE TEST
AND THE BAD NEWS IS SOMETHING SHOWED UP ON THE TEST............ HA HA HAHA HA...... DAMN YOU SALIZAR!

EEG TOMORROW 8am

I have to keep him awake all night so he falls asleep on his own when he gets there. They just called me to fill in a cancelation.
Zach can stay up for days and last time it did take three days for me to get him to be able to sleep on his own.
I am going to try it and see if it works. So here we are with no warning and no help off to the hospital tomorrow.

I better get some rock star for tonight.

Hard but good times.

UCLA is a challenge for us. Zach is feeling better which means he's cutting back on his meds which means he is going though withdrawls. He can't be more than two inches away from me! He needs lots of water and sleep is distrubed.

On top of this I can't breathe here. I want to get outside!

When I said I was on the five year plan ............. I really mean life time plan.



This is the real rain man and his father....

Hey! Check this out.....

Visual DNA Quiz This is so much Fun!
You click on pictures until you end up with a profile of yourself.
It's nice and I can't wait for Zachary to give it a try!

YOU HAVE TO DO IT! : )

I am starting a social network blog for families with mitchondrial disorders.

This would be really fun if it wasn't about genetics! LOL

You should check outNING It's easy to set up a social network and it's free!

All the families will have their own page and communicate on a main page.

Mutant Families Hey do you think it will offend people if I call it Mutant Families?

Please let me know if you think it is offensive???

I mean it's got to have some fun in there somewhere!

Go ahead and start your own! It's like your blog and all yoru favorite blogs would be in ONE PLACE! How cool is that!

POWNCE INVITES

I have some pownce invites.

Pownce is a new way to send messages, files, events, pictures, and
links to your friends.

Pownce is for large files 100 mb instead of the 10 through yahoo or less I think at AOL ( not sure but it's low)

I am just hanging on..... I am trying to get myself together.
I haven't been up on comments.
I am so sorry.

I think I am little post traumatic.
I know I am
I am also learning that I have the same faulty mitochondria as my son. ..... time to face that head on.

when I get back up to speed you'll know it.

Blogging is hard when you usually isolate when you are low on energy. I used to think I was depressed but I am always so optomistic and that's a conflict......so now I know I am not depressed I am just tired.

I think with all the information I have I can get over this faster than ever before.

Out of LA

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Originally uploaded by jippyjabber.

I love Los Angeles but I'd like to hit the road and get out of LA for a while. I might make a night trip to the beach. I am starting to realize how much Zach's Photophobia affects my life. I think we will start doing more at night and see if he can tolerate some living. We get stuck in the getto appartment and it's a spiritual death to me. I might go to see Bourne by myself. I have to force myself to get out and not let Zach's illness take me down too. I have been down and tired. One good thing ....I am too tired to worry about anything right now. LOL

Finally got zach to leave the house!
I was eating the Nanny's peanutbutter off a spoon.
I got food, cheap wine, cheap movie.


I also saved myself from buying a new Air Conditioner in Zach's room.
It was tilted inwards and water was dripping onto his bed. So we tilted it back out.
It's held in by duck tape. I am not kidding. I live in the getto property in a good part of town.
I would complain but Zach has torn the place up and nobody cared. I think he's getting over that now.
I noticed yesterday he straighted out the rug in his room!

ZACH READ THE NAMES OFF OF SEVERAL PRODUCTS AT THE STORE .....JUST FROM WATCHING TV.

WHY DID I WAIT SO LONG TO GET HIM CABLE?

I am still trying to get the Dmv to give me my name back.
I can't believe how many different people have told me different things.
I have to get my name changed. It seems that my divorce is still a mystery after all these years.

Nothing worse than speding days at LA county court house. The DMV needs to get the facts straight.


Zach is just growing before my eyes. I had to buy him three pairs of swim trunks this summer.