My New Earth work is actually on twiiter.com/BookClubClass It's a text messaging book club. In case you came here from the Oprah website and were wondering where it all is. I'll bring my New Earth Work over here because, I guess this is where it's meant to be. Welcome to Jippyjabber! PS I am auntjippy on the Oprah message boards.
Monday, April 30, 2007
I got this comment on the video of zachary twenty seconds of pain. I checked it out and it came from a kid so I said I didn't mind. One comment led to another and someone chimed in to defend me and I said this is a kid standing up for another kid. ......... eventually I got this email from him...... I had aready told him I thought he was a hero and would make a good big brother. He stood up for zach not knowing him and thinking ( and I see why) it was horrible of a mother to put this video up on the internet. Dillion is 13 with A D H D ... he is sweet!
hello i posted another comment it didnt post it could have ben 2 long ... i said i was sorry 4 what i said 2 U i just wanted U 2 know that i have A cousin hes 12 hes retareded my aunt has 2 dress him & wash him he still wears diapers he can walk & say A few words hes verry smart in his own way i have A D H D i can get wackyyyy sometimes my cousin hits him self & he bangs his head on the wall ... when i saw the video of zach i just thought is was some kids my age play fighting like i do with my sister & lil brother when i seen it i felt bad & sorry 4 him its how i am i really cryed when i seen that it really hurt me i just dont think is was right 2 post that on the internet 4 the whole world 2 see but i showed it 2 my mother & she told my why just like U say its 2 help other's if U have msn messenger plzz add me add me ........@hotmail.com or yahoo messenger ...........@yahoo.com or aim .............. plzz read this 2 zach 4 me im sure he cant read but thats ok .. hi zach i hope U get well soon & i hope all your pain goes Away even know i dont know U but my hart goes out 2 U love Dillon
Saturday, April 28, 2007
Friday, April 27, 2007
On the way home we see a Hersey kiss car. Like the Oscar Meyer weiner car but with three kisses.
We stop becasue it looks fun. zach plays some game and it turns out to be a fund raiser for Children's Hosp. " I just came from there" I fill out a form to win..... I don't even know what. .... so she hands me a mic and says look in the camera and say this...... I said what for? Oh just two people will see it so the judges know who you are. OK I can't leave Zach is into it.
I am now entered into the sweetest mom in America contest. I say Hi my name is Jennifer I am from Pasadena. Zach grabs the mic and says and " I am Mr. Zachary" Oh it was sooo cute! I am Mr. Zachary from Pasadena! I was so into that .....I nothing more to say to the camera but I like the traditional kisses. I give them out for no reason at all........
As soon as it was over I kept thinking everyones knows the best kisses come from mom and hershey's ...... I called a friend and told her to go do it and say that......she said, I can't I have PMS......I said good its free chocolate! LOL
Kissmobile Click around you can enter with a video of yourself and my slogan is up for grabs!
Thursday, April 26, 2007
A waiting room isn't a nursery. I know you want to sit down veg out and let your kids roam.
I broke up two fights. I got pushed out of the way by someone who ignored their child long enuogh for him to trample over three of us to get to the kid holding the remote for the nintendo game. I mentioned to a women three times that her kid just might have to go to the bathroom. Finally, she looks at her kid who was ummmmm picking his seat. Later, I see her coming out of the bathroom and she smiles at me like I had magical powers of the a child wisperer....He did have to go! ( oh boy!)
Why oh why can't they say hi. You come to this country, you have children here. You are going to a place where other children don't need to feel any worse than they already do. Please learn how to say hi or at least put a freaking smile on your face. I understnd enough spanish to know that you are laghing at how you think what you are saying is going right over my head. How even your child understands you. Wake up you are in America. Funny thing is.... everyone else noticed that I did know what you were saying. You are oblivious! When your kid comes to steal my kids toy and my kid smiles and says hi........the least you can do is say hi back. Oh yeah take a shower before you go out in public....
I had asked the dentist if they could lower this tooth into place and not pull it and they laughed at me and told me they don't do that. OF course what did the surgeon suggest they'd try first? Placing the tooth in the proper position. Bad news it will take four to six weeks to get a surgery date..... what the?
So basically I will be monitoring a chemical straight jacket becasue the pain is getting so bad. I wonder what if this tooth breaks out. This will be so messed up. No wonder I am bitching about waiting room behavior..... I also started raggin about my freinds boyfriend instead of comforting her. Arg. I am just tired and looking at super human feat coming up.
Did I mention I have been dieting and working out? Zach isn't too happy about this crap.
I have to go back tomorrow. I do not want too. Did I mention that they sent me to xray his leg today. He has osteropeana so that's low calcium of the bones. So he's getting ready to go to rehad and I by the time his name comes up he'll be full on crazy tooth pain.
Ok I'll stop bitching. I have a sweet story too.
Wednesday, April 25, 2007
I really just want it over and to be having a good summer.
I see the surgeon and he is the man I need to talk too. I have two appointments Thurs. and one on Friday.
I hope I get sleep tonight. I am so tired and I want to be sharp when I talk to the docs.
Tuesday, April 24, 2007
A Bicycle Dream
Originally uploaded by jippyjabber.
Zachary's Red Racer
It's on a trainer in his room. He is in love. He had a photo of this bike on the fridge for of couple years. He updated the photo and took care to point it out to me. He is a fan of the movie Triplets of Bellville. The boy in the movie has many autistic qualities. He has a red race bike and he rides in the Tour De France. I think Zach identifies with him. He wants a dog named Bruno too. One dream at a time kid. .....
Sunday, April 22, 2007
Zachary set to Mad World. Zach has a tooth that has to be pulled because there is not enough room for it to come in. It' s triggering his pain disorder. He's very brave. The video lost quality when it was compressed. Technically, it's a mess but I still like it....... Isn't that so typical Jippy?
Friday, April 20, 2007
I have to go back three times next week.
I spent the day there yesterday.
I talked to the doctor on the phone last night.
We have a plan for the weekend.
I have to change Zach's diet again.
It's just like old times.
I mean you can't know how good this is for us. We went down the street to the Disney store on Hollywood Blvd.
We found the blue Dynaco lightening Mcqueeen car! the little one This has been a source of nightmares for me. Now I just need to find Sarge and Filmore. LOL
Poor Zach, We were just outside the Disney store he's having a pain episode and we can't get out of the car. If ever anyone thought this was a tantrum . You know what kid pitches a fit delaying going in the store he wants, to buy basicallly what ever he wants..... We had a twenty minute window and we ran in and scored! He fell apart again and it took a long time to get home but when we did and added the new car to our collection He told me it was perfect.
Thursday, April 19, 2007
Zach is up and down and up and down. Thank god for the internet. I 've been online causing trouble. Also just sitting with him playing nurse. He is so sweet one minute and then tooth pain kicks in and well you've seen that video.
He can still hobble around and that is the most important thing.
PROGRESS ON MY VIDEO WORK!!!! I am doing editing tutorials on my computer. I have a couple of different formats in video and I have to convert them to digital. I just need to do this before I make other decisions. So I am watching the videos and imagine the teachers naked. JUST kidding!
Also boxing up books for the library.
My little joke of a work out program but I just wanted to give it a slot of time and see if I can keep it a priority. As long as Zach isn't in the Hosp. I am forcing myself into the equation of health and well being.
Wednesday, April 18, 2007
Originally uploaded by jippyjabber.
Celuloid Blonde Award
Celluloid Blonde Award
I HAVE TO FIX A LINK AND PUT IN THE CREDITS..... I AM NOT DONE HERE.
My favorite posts from my Link toos.......... AKA blog roll..............
Celluloid Blonde Read every word she writes. Here is something she wrote on love. You might find yourself there, captured in a couple of words. My favorite post of hers changes all the time. I went with the first one that came to mind. Love, I swear to god I am not thinking about love, not in any way. Except maybe this, read Max, you'll love her! I have to say, with Max, Never Judge a Post by it's Cover! The gold is in the comments. ( PS be careful she' not tolerant of ......well, just go find out for yourself.)
The Show Must Go On I am just going to link to her current post. It sums up who she is so well. She is fun, cool and sentimental. Her heart just makes yours open. She's an experience. She's got energy, she is keeping up with her teenagers and she's living large in her own world. I want to be able to do that. She gave me the secret code to get a hold of her on the down low. You know what I mean, that's sweet, sweet, sweet.
A Family Story She is the last person you would think would be getto cool but she is...... GO SEE! She does a fun thing every Monday. A different person is in charge of it every Mon. She has Picture Fridays. The cutest little girls in the world! Confessions of a working mom " I have totally crawled into Audreys crib to get her to sleep once or twice. " She totally posted about my little man Zach. I love her just for that. She surprised me when she went out on a limb and got a little controversial. She got lots of comments and many bloggers express their points of view on her post, SHould pre-school be mandatory? She gets a humanitarian award from me. I said this before, If I was her, I would be a snotty biotch. She could be but instead she opens her world and shares it freely. I so enjoy knowing her.
Moving J Wards, I am linking to her video and you really should vote for it. Zach made is own response to it ( that's You Tube Talk ) Her Toby is an Extra cute baby! I expect great things from this woman. She has the gift of discernment. I don't know what that means but I like how she interprets things. if I ever make it Oprah she promises to come and hold my purse or pass out tissues. One post I loved was when she grabbed the green food coloring instead of vanilla while making oatmeal cookies. LOL I laughed so hard when I saw the green cookies on her blog. Another favorite post of hers is ......buying a lie. You've got to click around on her blog. I predict she will write a novel one day. I don't know why I just think she will.
In My Shoes my favorite post of hers is called' hello 'because she finally after three years got a communication device appraoved for PARTIAL payment from her insurance company. I also loved that she put up the Zachary badge on her site. I am having trouble linking to my post so it's a general link but you are so lucky becasue if you scroll down to April 12. "coming up for Air" you'll see she gives me a big thank you and a shout out! LOL you can't miss it! She is going through a lot and she has been a huge support to me.
Pooks AKA The green goddes. Writers Do You Suffer? You'll see the post came from a question from a student ( I think) How kind of her to make it a post and then..... she helped me personally, answering a question I had in the comments. How generous. I learned about the green miles, when she takes her bike instead of driving. I am freakin hauted right now because she wrote another post about writing or it's kind of how the her brain works while writing.... something like that and I loved it. Maybe I will find it later.
LOLO LOLO is my BFF So, I have to mention her here. She is a CRAPTASTIC! blogger. I mean it. She can go forever with out posting. Also it Is a covert operation so people she knows don't know it's hers and she can say anything. We talk in code because we like it. To stay out of trouble. Her blog sends her emails to her work computer so it's almost been taken over by me trying to get the her to call me. What the fuck call more often! I am kidding. sort of... My favorite post of hers is, The Shift, just skip to the end where she says I am so smart! : )
Tuesday, April 17, 2007
Amy, is a A Hoki fan is a Virginia Tech Alum. She is "worse" than Pooks who is a foot ball fan, mostly Cowboys. ( I tried to link to one her Pooks football posts but It didn't work.)
*****If this stuff is too sad, like you've seen it over and over again on the news..... just hit the Pooks link and stay there. Her Payton Manning video will make you laugh. You know what I just for one day, I'd want to put Zach on his team.....I already know what would happen....Zach would tackle him to the ground......that might be funny too**********
I am just learning about teams and fans. I didn't know what I was missing out on. With the joy of victory comes the agony of defeat. And today the pain of loss..... I am not sure if any of us can ever understand. Virginia Tech has now replaced the University of Texas Austin for the record of the largest killing spree on a campus. It's very very sad.
Amy is really compassionate and sweet and I know she is sick over this tragic situation. Aren't we all?
This blog was up yesterday, I have no idea how they could know all of this
I just hope to present this and hope that when we read it, we somehow, in sharing her appreciation for and her celebration of Virginia Tech, that we help these kids, teachers and their families with our good thoughts.
Amy's VT Posts
Now more stuff I stole from Amy for this tribute. ( hopefully A picture will follow)
The origin of the word "Hokie" has nothing to do with a turkey. It was coined by O. M. Stull (class of 1896), who used it in a spirit yell he wrote for a competition.
Hoki, Hoki, Hoki, Hy.
Techs, Techs, V.P.I.
Polytechs - Vir-gin-ia.
Rae, Ri, V.P.I.
(V.P.I. stands for Virginia Polytechnic Institute).
The Hokie Bird, is modeled on a large turkey, has been the official sport mascot of Virginia Tech since 1961.
Monday, April 16, 2007
A blog buddy did this and we have to vote for them so they can have a new TV
A place to vote give it a five on the rating it deserves it!
Give it a High Five
moving j-wards the good people who made this
Although, I don't ever want to piss these people off. Their aim is too good. So vote everyday, it's allowed.
Saturday, April 14, 2007
Basis of the Disease
Mitochondrial diseases result from failures of the mitochondria, specialized compartments present in every cell of the body except red blood cells. Mitochondria are responsible for creating more than 90% of the energy needed by the body to sustain life and support growth. When they fail, less and less energy is generated within the cell. Cell injury and even cell death follow. If this process is repeated throughout the body, whole systems begin to fail, and the life of the person in whom this is happening is severely compromised. The disease primarily affects children, but adult onset is becoming more and more common.
Diseases of the mitochondria appear to cause the most damage to cells of the brain, heart, liver, skeletal muscles, kidney and the endocrine and respiratory systems.
Depending on which cells are affected, symptoms may include loss of motor control, muscle weakness and pain, gastro-intestinal disorders and swallowing difficulties, poor growth, cardiac disease, liver disease, diabetes, respiratory complications, seizures, visual/hearing problems, lactic acidosis, developmental delays and susceptibility to infection.
So we are focused on quality of life here.
Friday, April 13, 2007
I got ready for it today. I have everything I need to handel it here. If he breaks through all of his meds and all of my tricks then I'll try to get him to Children's Hopital or I'll call 911. I have had to do that twice before because he was turning blue. I could not get him stable. He gets some morphine and hopefully sleep.
Now that I wrote this and took into consideration that he is bigger, the doc can go higher on the pain meds. There are increased right now but I have no idea what the limit is so I won't shy away from calling the doctor. I hate to call them.
I have even stocked up on some food for me. I am trying to be really strong and healthy during the hard times. I haven't pulled it off in the past and quit trying.
The best part about this is that it's the last tooth until his molars become a problem. I used to do this ......well for years one tooth after another and it was a violent hell. So one more time............
It will be ok.
Thursday, April 12, 2007
Wednesday, April 11, 2007
Sunday, April 08, 2007
Zach had a blast! He hurt his foot and his cousin gave him a piggy back ride while he called out the color of egg he saw and the other cousin picked up the eggs. These are older boy cousins and I didn't think they would want anything to do with Easter ............... What great kids they are. I held back the tears but my heart was so overwhelmed. In a good way. Looks like I am back to the wheel chair for a while.
I won't be around as much but I will try to check in. DOn't forget about me.......
Friday, April 06, 2007
I just made of point of having fun. I am just having vacation envy.
I put some feelers out on a project and the main shark I work for ......well, I forgot his girlfriend is in the business too. Some dude with money keeps playing with them claiming he'll match funds......when he knows they can't get the rest of the money. Whatever, they keep wanting to keep projects for their big cross over deal. Actors eat up what little money they have to be held for a project but they won't sign a letter of intent or let you use their name to help raise money. Actors hate that........ It's just the deepest end of the bullshit. The thing is this crap used to work out for me in a weird way. Now it's just not anymore.
If it's possible I would actually like to know what the hell I am doing..........
I do want to do an online class ( I am hoping Max will put in a good word for me) but I was waiting for Zach's surgery date.
It's not canceled it's postponed. I got a call from the hospital and they will call me back to reschedule. I hate when I say ok I am going to wait for this or that and ............the waiting gets extended...... I have to learn to be more fluid with life. I was type A neurotic and I liked it better that way. Oh well.
Don't worry if I go MIA for a while..... I timed this surgery close and now that it has been delayed I may have to deal with this tooth trying to cut through the gums. I am going to try to get one of his doctors to pull some strings for us.
On the other hand so many things are getting better that I am willing for more good to come. ( as long as I don't crack the whip on myself the second we are not in the mist of hell. )
Thursday, April 05, 2007
SAME FOLKS ON OPRAH TODAY!
What kind of World Do You Want
John Ondrasik- who is the lead singer of the music group Five for Fighting
has a charity where you make a video of 'what kind of world do you want"-
On his site he has made a few of his own personal choices & The charity Autism Speaks was one of them!
(Everytime someone downloads this video or a video you make- 49 cents goes towards the charity designated for each video)
The link below is the actual video for Autism Speaks- It is very BEAUTIFUL!- Towards the end keep reading the words-
It really is a world any parent that has a child with Autism would want..
In My Shoes I stole this from here the post and everything.
She is having some trying times with her little one with autism. So we are sending her some good wishes and prayers.
Wednesday, April 04, 2007
WEDNESDAY ECHOS OF AUTISM ON WORLD NEWS WITH CHARLES GIBSON
THURSDAY FAMILIES WITH AUTISM ON OPRAH
ZACHARY IS BATTTING 1000!
Yep, If you ckick go to my Jippyjabberchannel Zachary's Blinking Video just hit 1000 views. A STAR IS BORN!
He is working on a special response video to one of his favorite You Tubers. You'll have to wait and see......
Some times I pretend like nothing is wrong. I believe it so much that I start bitching myself out for not being more successful. I am such a fucking slacker. I was proabably never going to amount to anything anyways. I just haven't gotten it done. Why do I still live here? Where are the vacation pictures? Zachary swimming with the dolphins. IS this all I can give him?
Do you think three Easter baskets will make up for it? He picked out three baskets when he saw them. I realized then that he won't have easter with his cousin. I didn't want to fight with him in the store. The truth is I wanted him to win even if we did. He knows almost every present he ever gets. I know It's sounds so great, "The Nanny." The truth is he is a two person job and I rarely leave them alone. I can't risk loosing her.
He is freaking out now and I am in a mode. How can I blame this on me? I recognise this search mode going through my mind and red lights start flashing. I'll go comfort him.
I know we are OK. Oh the snake of guilt the slithering fuck. I let my gaurd down. It's those lonely easter baskets. I'll think of something ........now that I have named the beast. He likes those plastic eggs. I can hide them and he'll find gummy lifesavers in them and maybe some hot wheels. He will be surprised, maybe even looking for a bunny somewhere. Sometimes it's not so bad when I pretend like nothing is wrong.
Tuesday, April 03, 2007
IF YOU HAVE NORMAL KIDS...DON'T LET THEM BE AFRAID....OUR KIDS NEEDS FRIENDS.. THIS BOOK CAN HELP..
The Autism Acceptance Book is an interactive, educational, and character-building book that introduces children to the challenges faced by people with autism while also supporting their personal journey toward appreciating and respecting people's differences.
This book offers educational information, conversation-starters, and engaging exercises that invite children to "walk in someone else's shoes" as they learn to treat others the same ways they would like to be treated themselves.
To a very special Girl Scout troop! They are "BUDDIES" to an AUTISM CLASSROOM! You girls are SWEET! I'll never forget!
Monday, April 02, 2007
I want to let you know that the audience of 90 physicians (mostly family
practitioners and pediatricians) were absolutely riveted to the sceen when I
showed those brief clips of your son! I am absolutely sure that those are
images that they will remember forever. And I am also sure, by the looks on
their faces as well as the questions asked of me afterwards, that my purpose was
served - in fact, I saw lots of nodding in the audience when I told them that I
do not think these children should be assessed and responded to in the same way
as other,non-autistic children, when they aggress, including self aggression.
I have to say that my experience dealing with families of children with autism
is that these are - you are - the most generous of parents, really trying to
help educate others. That is a wonderful effort on your part.
I am really humbled and honored to be even a small part of that.
thanks again, so very much.
Dr. Debra found the videos of Zachary on You Tube and contacted me for permission to use them.