Jippy U make me sick!

I got this comment on the video of zachary twenty seconds of pain. I checked it out and it came from a kid so I said I didn't mind. One comment led to another and someone chimed in to defend me and I said this is a kid standing up for another kid. ......... eventually I got this email from him...... I had aready told him I thought he was a hero and would make a good big brother. He stood up for zach not knowing him and thinking ( and I see why) it was horrible of a mother to put this video up on the internet. Dillion is 13 with A D H D ... he is sweet!

hello i posted another comment it didnt post it could have ben 2 long ... i said i was sorry 4 what i said 2 U i just wanted U 2 know that i have A cousin hes 12 hes retareded my aunt has 2 dress him & wash him he still wears diapers he can walk & say A few words hes verry smart in his own way i have A D H D i can get wackyyyy sometimes my cousin hits him self & he bangs his head on the wall ... when i saw the video of zach i just thought is was some kids my age play fighting like i do with my sister & lil brother when i seen it i felt bad & sorry 4 him its how i am i really cryed when i seen that it really hurt me i just dont think is was right 2 post that on the internet 4 the whole world 2 see but i showed it 2 my mother & she told my why just like U say its 2 help other's if U have msn messenger plzz add me add me ........@hotmail.com or yahoo messenger ...........@yahoo.com or aim .............. plzz read this 2 zach 4 me im sure he cant read but thats ok .. hi zach i hope U get well soon & i hope all your pain goes Away even know i dont know U but my hart goes out 2 U love Dillon

Make your own KFC sign at KentuckyFriedCruelty.com

The cute story.

On the way home we see a Hersey kiss car. Like the Oscar Meyer weiner car but with three kisses.
We stop becasue it looks fun. zach plays some game and it turns out to be a fund raiser for Children's Hosp. " I just came from there" I fill out a form to win..... I don't even know what. .... so she hands me a mic and says look in the camera and say this...... I said what for? Oh just two people will see it so the judges know who you are. OK I can't leave Zach is into it.

I am now entered into the sweetest mom in America contest. I say Hi my name is Jennifer I am from Pasadena. Zach grabs the mic and says and " I am Mr. Zachary" Oh it was sooo cute! I am Mr. Zachary from Pasadena! I was so into that .....I nothing more to say to the camera but I like the traditional kisses. I give them out for no reason at all........

As soon as it was over I kept thinking everyones knows the best kisses come from mom and hershey's ...... I called a friend and told her to go do it and say that......she said, I can't I have PMS......I said good its free chocolate! LOL

Kissmobile Click around you can enter with a video of yourself and my slogan is up for grabs!

I waited and I waited and I waited.

A waiting room isn't a nursery. I know you want to sit down veg out and let your kids roam.
I broke up two fights. I got pushed out of the way by someone who ignored their child long enuogh for him to trample over three of us to get to the kid holding the remote for the nintendo game. I mentioned to a women three times that her kid just might have to go to the bathroom. Finally, she looks at her kid who was ummmmm picking his seat. Later, I see her coming out of the bathroom and she smiles at me like I had magical powers of the a child wisperer....He did have to go! ( oh boy!)

Why oh why can't they say hi. You come to this country, you have children here. You are going to a place where other children don't need to feel any worse than they already do. Please learn how to say hi or at least put a freaking smile on your face. I understnd enough spanish to know that you are laghing at how you think what you are saying is going right over my head. How even your child understands you. Wake up you are in America. Funny thing is.... everyone else noticed that I did know what you were saying. You are oblivious! When your kid comes to steal my kids toy and my kid smiles and says hi........the least you can do is say hi back. Oh yeah take a shower before you go out in public....

I had asked the dentist if they could lower this tooth into place and not pull it and they laughed at me and told me they don't do that. OF course what did the surgeon suggest they'd try first? Placing the tooth in the proper position. Bad news it will take four to six weeks to get a surgery date..... what the?

So basically I will be monitoring a chemical straight jacket becasue the pain is getting so bad. I wonder what if this tooth breaks out. This will be so messed up. No wonder I am bitching about waiting room behavior..... I also started raggin about my freinds boyfriend instead of comforting her. Arg. I am just tired and looking at super human feat coming up.
Did I mention I have been dieting and working out? Zach isn't too happy about this crap.

I have to go back tomorrow. I do not want too. Did I mention that they sent me to xray his leg today. He has osteropeana so that's low calcium of the bones. So he's getting ready to go to rehad and I by the time his name comes up he'll be full on crazy tooth pain.

Ok I'll stop bitching. I have a sweet story too.

It's that day again. I am trying to be in the now. Fit my healthy lifstyle into this hospital situatioin.
I really just want it over and to be having a good summer.

I see the surgeon and he is the man I need to talk too. I have two appointments Thurs. and one on Friday.

I hope I get sleep tonight. I am so tired and I want to be sharp when I talk to the docs.

A Bicycle Dream

A Bicycle Dream
Originally uploaded by jippyjabber.

Zachary's Red Racer
It's on a trainer in his room. He is in love. He had a photo of this bike on the fridge for of couple years. He updated the photo and took care to point it out to me. He is a fan of the movie Triplets of Bellville. The boy in the movie has many autistic qualities. He has a red race bike and he rides in the Tour De France. I think Zach identifies with him. He wants a dog named Bruno too. One dream at a time kid. .....

Zachary set to Mad World. Zach has a tooth that has to be pulled because there is not enough room for it to come in. It' s triggering his pain disorder. He's very brave. The video lost quality when it was compressed. Technically, it's a mess but I still like it....... Isn't that so typical Jippy?

RSD-Reflex Sympathetic Dystrophy/CRPS-Complex Regional Pain

CRPS aka RSD - Pain Syndrome

Three times a charm at Children's Hospital.


I have to go back three times next week.

I spent the day there yesterday.

I talked to the doctor on the phone last night.

We have a plan for the weekend.

I have to change Zach's diet again.

It's just like old times.



GOOD NEWS!

I mean you can't know how good this is for us. We went down the street to the Disney store on Hollywood Blvd.
We found the blue Dynaco lightening Mcqueeen car! the little one This has been a source of nightmares for me. Now I just need to find Sarge and Filmore. LOL

Poor Zach, We were just outside the Disney store he's having a pain episode and we can't get out of the car. If ever anyone thought this was a tantrum . You know what kid pitches a fit delaying going in the store he wants, to buy basicallly what ever he wants..... We had a twenty minute window and we ran in and scored! He fell apart again and it took a long time to get home but when we did and added the new car to our collection He told me it was perfect.

awwww

Hospital Day.

Zach is up and down and up and down. Thank god for the internet. I 've been online causing trouble. Also just sitting with him playing nurse. He is so sweet one minute and then tooth pain kicks in and well you've seen that video.

He can still hobble around and that is the most important thing.


PROGRESS ON MY VIDEO WORK!!!! I am doing editing tutorials on my computer. I have a couple of different formats in video and I have to convert them to digital. I just need to do this before I make other decisions. So I am watching the videos and imagine the teachers naked. JUST kidding!

Also boxing up books for the library.

My little joke of a work out program but I just wanted to give it a slot of time and see if I can keep it a priority. As long as Zach isn't in the Hosp. I am forcing myself into the equation of health and well being.

celuloid_blonde_award_ii
Originally uploaded by jippyjabber.

Celuloid Blonde Award
Celluloid Blonde Award

I HAVE TO FIX A LINK AND PUT IN THE CREDITS..... I AM NOT DONE HERE.

My favorite posts from my Link toos.......... AKA blog roll..............

Celluloid Blonde Read every word she writes. Here is something she wrote on love. You might find yourself there, captured in a couple of words. My favorite post of hers changes all the time. I went with the first one that came to mind. Love, I swear to god I am not thinking about love, not in any way. Except maybe this, read Max, you'll love her! I have to say, with Max, Never Judge a Post by it's Cover! The gold is in the comments. ( PS be careful she' not tolerant of ......well, just go find out for yourself.)

The Show Must Go On I am just going to link to her current post. It sums up who she is so well. She is fun, cool and sentimental. Her heart just makes yours open. She's an experience. She's got energy, she is keeping up with her teenagers and she's living large in her own world. I want to be able to do that. She gave me the secret code to get a hold of her on the down low. You know what I mean, that's sweet, sweet, sweet.


A Family Story She is the last person you would think would be getto cool but she is...... GO SEE! She does a fun thing every Monday. A different person is in charge of it every Mon. She has Picture Fridays. The cutest little girls in the world! Confessions of a working mom " I have totally crawled into Audreys crib to get her to sleep once or twice. " She totally posted about my little man Zach. I love her just for that. She surprised me when she went out on a limb and got a little controversial. She got lots of comments and many bloggers express their points of view on her post, SHould pre-school be mandatory? She gets a humanitarian award from me. I said this before, If I was her, I would be a snotty biotch. She could be but instead she opens her world and shares it freely. I so enjoy knowing her.


Moving J Wards, I am linking to her video and you really should vote for it. Zach made is own response to it ( that's You Tube Talk ) Her Toby is an Extra cute baby! I expect great things from this woman. She has the gift of discernment. I don't know what that means but I like how she interprets things. if I ever make it Oprah she promises to come and hold my purse or pass out tissues. One post I loved was when she grabbed the green food coloring instead of vanilla while making oatmeal cookies. LOL I laughed so hard when I saw the green cookies on her blog. Another favorite post of hers is ......buying a lie. You've got to click around on her blog. I predict she will write a novel one day. I don't know why I just think she will.


In My Shoes my favorite post of hers is called' hello 'because she finally after three years got a communication device appraoved for PARTIAL payment from her insurance company. I also loved that she put up the Zachary badge on her site. I am having trouble linking to my post so it's a general link but you are so lucky becasue if you scroll down to April 12. "coming up for Air" you'll see she gives me a big thank you and a shout out! LOL you can't miss it! She is going through a lot and she has been a huge support to me.


Pooks AKA The green goddes. Writers Do You Suffer? You'll see the post came from a question from a student ( I think) How kind of her to make it a post and then..... she helped me personally, answering a question I had in the comments. How generous. I learned about the green miles, when she takes her bike instead of driving. I am freakin hauted right now because she wrote another post about writing or it's kind of how the her brain works while writing.... something like that and I loved it. Maybe I will find it later.

LOLO LOLO is my BFF So, I have to mention her here. She is a CRAPTASTIC! blogger. I mean it. She can go forever with out posting. Also it Is a covert operation so people she knows don't know it's hers and she can say anything. We talk in code because we like it. To stay out of trouble. Her blog sends her emails to her work computer so it's almost been taken over by me trying to get the her to call me. What the fuck call more often! I am kidding. sort of... My favorite post of hers is, The Shift, just skip to the end where she says I am so smart! : )

Zach does Kill My TV ( a response)

This is a video response, go vote for the original Give it a High Five A star is born!

Has it come to a world where our campus have to have Gunman Loose on Campus Drills and Procedures?

Amy, is a A Hoki fan is a Virginia Tech Alum. She is "worse" than Pooks who is a foot ball fan, mostly Cowboys. ( I tried to link to one her Pooks football posts but It didn't work.)

*****If this stuff is too sad, like you've seen it over and over again on the news..... just hit the Pooks link and stay there. Her Payton Manning video will make you laugh. You know what I just for one day, I'd want to put Zach on his team.....I already know what would happen....Zach would tackle him to the ground......that might be funny too**********

I am just learning about teams and fans. I didn't know what I was missing out on. With the joy of victory comes the agony of defeat. And today the pain of loss..... I am not sure if any of us can ever understand. Virginia Tech has now replaced the University of Texas Austin for the record of the largest killing spree on a campus. It's very very sad.

Amy is really compassionate and sweet and I know she is sick over this tragic situation. Aren't we all?

This blog was up yesterday, I have no idea how they could know all of this

I just hope to present this and hope that when we read it, we somehow, in sharing her appreciation for and her celebration of Virginia Tech, that we help these kids, teachers and their families with our good thoughts.

Amy's VT Posts

Now more stuff I stole from Amy for this tribute. ( hopefully A picture will follow)

The origin of the word "Hokie" has nothing to do with a turkey. It was coined by O. M. Stull (class of 1896), who used it in a spirit yell he wrote for a competition.

Hoki, Hoki, Hoki, Hy.
Techs, Techs, V.P.I.
Sola-Rex, Sola-Rah.
Polytechs - Vir-gin-ia.
Rae, Ri, V.P.I.
(V.P.I. stands for Virginia Polytechnic Institute).


The Hokie Bird, is modeled on a large turkey, has been the official sport mascot of Virginia Tech since 1961.

A blog buddy did this and we have to vote for them so they can have a new TV
http://h30044.www3.hp.com/hptv/home/View.aspx?entryId=140

A place to vote give it a five on the rating it deserves it!


Give it a High Five


moving j-wards the good people who made this

Best Actress
Best Director
Best Baby
Best song

Although, I don't ever want to piss these people off. Their aim is too good. So vote everyday, it's allowed.

HE IS WALKING!

HE is putting his foot all the way down on the floor.

More to follow...... just wanted to shout it out!

What is a Mitochondrial Disorder?

Basis of the Disease

Mitochondrial diseases result from failures of the mitochondria, specialized compartments present in every cell of the body except red blood cells. Mitochondria are responsible for creating more than 90% of the energy needed by the body to sustain life and support growth. When they fail, less and less energy is generated within the cell. Cell injury and even cell death follow. If this process is repeated throughout the body, whole systems begin to fail, and the life of the person in whom this is happening is severely compromised. The disease primarily affects children, but adult onset is becoming more and more common.

Diseases of the mitochondria appear to cause the most damage to cells of the brain, heart, liver, skeletal muscles, kidney and the endocrine and respiratory systems.

Depending on which cells are affected, symptoms may include loss of motor control, muscle weakness and pain, gastro-intestinal disorders and swallowing difficulties, poor growth, cardiac disease, liver disease, diabetes, respiratory complications, seizures, visual/hearing problems, lactic acidosis, developmental delays and susceptibility to infection.

So we are focused on quality of life here.

Zach has given himself a black eye and maybe broke his nose. I put frozen peas on his face and I'll see what it looks like tomorrow. He can heal fast with things like this so it could be fine tomorrow. It just looked really bad. He's much bigger now than when he was going through this teething, mouth pain.

I got ready for it today. I have everything I need to handel it here. If he breaks through all of his meds and all of my tricks then I'll try to get him to Children's Hopital or I'll call 911. I have had to do that twice before because he was turning blue. I could not get him stable. He gets some morphine and hopefully sleep.

Now that I wrote this and took into consideration that he is bigger, the doc can go higher on the pain meds. There are increased right now but I have no idea what the limit is so I won't shy away from calling the doctor. I hate to call them.

I have even stocked up on some food for me. I am trying to be really strong and healthy during the hard times. I haven't pulled it off in the past and quit trying.

The best part about this is that it's the last tooth until his molars become a problem. I used to do this ......well for years one tooth after another and it was a violent hell. So one more time............

It will be ok.

D 10, sugar in the IV

DSC04167
Originally uploaded by jippyjabber.

A little sugar and a nap, It would help anyone. We got to go home but still not walking.

X Ray

DSC04160
Originally uploaded by jippyjabber.

Nothing shows up on the X Ray.