We are still floating down the river in Egypt....yeah, yeah, De Nile.......

So I told my sister that I might get ear plugs like the ones on Greys Anatomy. Because it's the sound of his pain that has me wanting to throw up my whole life. So she says, I don't know why you are going to do it. ....... so I think this is kind of funny but she's not laughing.... so I have to consider this for a moment. I told her Zach has a bald spot on his head. When his kidneys failed and his liver failed.... well the whole rabdomyalisis thing ......he lost a bunch of hair..... most of it has grown back but a small roudn spot is still missing. He has hair that covers it. I could take him in for a series of shots in the head, right in the bald spot to try and see if ......IF his hair will grow back........ So, I am not doing it. He might be mad at me one day and I might be mad at me one day.....but I am not doing it. It's different with WALKING .........

You have to understand. I worry about my son suffering. She worries about me suffering. From her pont of view she has to see us go through this. Also, we know someone who has a child with special needs and she just walked away. I can't judge. If I become so messed up that the best thing for Zach is for me to walk away..... then I hope I have the sanity to see it and the strength to do it. ( Bullshit, I'll never do it.)

What the fuck he's going to get worse with puberty anyway so take the medicine at the same time and gut it out and hopefully his leg will improve.

I have one more happy day because we start the medicine at night. I think I will take him to famous cupcakes