LISTEN TO THIS.......
You don't want to know what Brett Battles is thinking about you! Unless you think of some alternative you, out there living the life of an international spy or on the brink of a life changing challenge and you like the idea that the person in line next to you waiting for a latte just might be more than the average joe.
"alternate stories" a podcast by Brett Battles on Bantam Dell
If you want to know about the process of inspiration and making a muse out of the everday experience, listen to Brett's podcast on the Bantam Dell website.
Monday, July 02, 2007
Sunday, July 01, 2007
Zachary's neighbor in the hospital
DSC04370
Originally uploaded by jippyjabber.
I had to take this photo. Baby is coming back from a MRI. The parents are still in the waiting room outside the MRI. I thought this would cheer them up if I got a picture of how cute he is in his transport. Baby's parents kept me up all night praying for him. I didn't mind. The young new parents finally got some rest when baby got some medicine. It felt like a miracle to all of us!
Saturday, June 30, 2007
Movies and Morphine
DSC04365
Originally uploaded by jippyjabber.
Distraction is the second best way to deal with pain. He got to download the imperors new groove from Itunes before we went to the hospital. He patterns on tech stuff. He has to watch Ic e Age on his Ipod and then maybe he can watch something else. Ice Age was the first movie he watched on the Ipod. Was I smart enough to be careful what movie he watched on the computer first? Depends on if you think Aristocats is a good one or not? Only kidding I picked long ones with music to help him sleep. Sometimes it works. Could it be the morphine? why chance it, pull out all the stops.
Drink so they can take out the IV !
DSC04373
Originally uploaded by jippyjabber.
Was mommy a little pushy? Drink so they can take out your IV. I did think of it in advance and came prepared with his own personal Turtle Cup. I got the little turtle sippie cup at Starbucks. It is the best seal I've ever had on a sippy cup. It' s my favorite cup I've ever gotten for him. He isn't into styrofoam ( who is?) and it's hard to find a nurse every time you need to get a new cup. It's a cute turtle and boy stuff is harder to find than cute princess paraphernalia. I think he did drink a little more and sooner with a nice cup. I get some green points for the environment too. Also check out the piano body pillow in the back ground. My sister told me she got lots of looks as she walked to our room. You know a pro family when they don't have balloons or flowers but they have comfy pillows and fun sippy cups! Alright so there is some pink on the pillow, Zach said it's still cool and so it is......
Friday, June 29, 2007
Wednesday, June 27, 2007
when he sleeps
I look through his face
my mind can not believe
a presence
it chokes my soul
I can't breathe or open my eyes
a beautiful truth comes
twined together
I defend his life
his suffering is ancient
and so is my love
Thanks so much for your concern. We go in 5:30 am and get upstairs right away for an IV and then in surgery by 7am. This lessons the chance of getting bumped by an emergency. Also it makes it easier on his body. He will have D10 ( sugar) and morphine). I am kind of jealous.....just kidding. He has a great team of doctors and I feel ready for this.
My sister Kathryn has been so helpful. She is such a comfort to Zach during these times. She has a gift and knows how to come in and make him feel cozy. My BFF LoLo will stop by I am sure. And then of course he beloved MS. Thea will be checking on the cat Mon Cheri. As well as us. It would be great to be home by Friday.
I look through his face
my mind can not believe
a presence
it chokes my soul
I can't breathe or open my eyes
a beautiful truth comes
twined together
I defend his life
his suffering is ancient
and so is my love
Thanks so much for your concern. We go in 5:30 am and get upstairs right away for an IV and then in surgery by 7am. This lessons the chance of getting bumped by an emergency. Also it makes it easier on his body. He will have D10 ( sugar) and morphine). I am kind of jealous.....just kidding. He has a great team of doctors and I feel ready for this.
My sister Kathryn has been so helpful. She is such a comfort to Zach during these times. She has a gift and knows how to come in and make him feel cozy. My BFF LoLo will stop by I am sure. And then of course he beloved MS. Thea will be checking on the cat Mon Cheri. As well as us. It would be great to be home by Friday.
Tuesday, June 26, 2007
CONGRATULATIONS BRETT BATTLES! THE CLEANER HITS BOOKSTORES TODAY!
THE CLEANER HITS THE BOOKSTORES TODAY!
I can't imagine what it's like to wake up and have it be the day your book hits the bookstores.....
Do you know who this is? CLICK HERE
THE CLEANER HITS THE BOOKSTORES TODAY!
I can't imagine what it's like to wake up and have it be the day your book hits the bookstores.....
Do you know who this is? CLICK HERE
Monday, June 25, 2007
My butterfly
DSC04356
Originally uploaded by jippyjabber.
He choose a book, Butterfly and Moth.
So we are chilling, waiting for his surgery.
the pain is intense. He had his pre-op appointment.
He got really nerveous and passed out.
So I am on operation relax the boy.
I am feeling ok and slightly positive about it.
They call tomorrow and tell us when the surgery is.
We still have to go in first thing in the morning to get on an IV
that will be good because his pain will be undercontrol
Sounds like a lot of waiting for mom.
I want to come home by Friday and I want him to walk as well as he can now.
Sunday, June 24, 2007
cousin came to visit
DSC04352
Originally uploaded by jippyjabber.
Sister dropped off my nephew in the night..... he is supposed to stay a few days. I wanted to give him a pizza movie night for his birthday.
He's says he has a sore throat.... I called my sister.
she says oh he was sleeping with his mouth open it's just a dry throat.
hmmmmmm
he wakes up caughing and sneezing
I call my sister
someone will pick him up at 7pm..... tell him to stay outside.( what the hell?)
Zach can't have his surgery if he's sick. Zach can wind up in the hospital on IV's if he gets sick.
Zach doens't have an immune system that will fight this off.
My throat hurts.
My sister is going to die.
Saturday, June 23, 2007
ZACH LOVED EVAN ALMIGHT!
I liked it.
I wasn't angry over slipping in a "shut up mom " or a grown up joke.
I wasn't put off by the moral message.
Morgan Freeman wasn't in the film enough..... : ) A little more god please.
I wasn't put off by the political message
It was tame compated to what we already get.
There was a little nail biting for Zach but he wasn't too scared or anxious.
His first action flick....well the ending was moving!
The funny was funny but really funny to a little boy....... I had to love it..... Zach laughing!
We will have to go again.....
OK I don't know if I liked it that much but I was thrilled watching my kid watching a movie!
I liked it.
I wasn't angry over slipping in a "shut up mom " or a grown up joke.
I wasn't put off by the moral message.
Morgan Freeman wasn't in the film enough..... : ) A little more god please.
I wasn't put off by the political message
It was tame compated to what we already get.
There was a little nail biting for Zach but he wasn't too scared or anxious.
His first action flick....well the ending was moving!
The funny was funny but really funny to a little boy....... I had to love it..... Zach laughing!
We will have to go again.....
OK I don't know if I liked it that much but I was thrilled watching my kid watching a movie!
Friday, June 22, 2007
A LETTER TO THE SURGEON FROM THE GENETICS CLINIC....
Zachary is followed by myself in CHLA Medical Genetics for an inborn error of mitochondrial energy metabolism. Clinical manifestations in Zachary include autism, cyclic vomiting, complex regional pain syndrome and rhabdomyolysis. Mitochondrial disorders decrease the ability to produce energy in adequate amounts, and typically involve those tissues with the highest energy demands. This letter discusses some precautions that are prudent to take when patients within this group of disorders undergo surgical procedures.
Patients with mitochondrial disease often are sensitive to fasting. Fortunately, the administration of IV D10 (with appropriate electrolytes) at least at a rate of maintenance has been associated with an absence of any fasting complications in patients with mitochondrial disease in my experience. The patient can be fasted overnight, with an IV placed and D10 administered starting in the early morning. The D10 containing IV fluid should be run throughout the pre-operative, operative, and post-operative phase until the child is able to adequately take enteral feedings. In the vast majority of cases, hospitalization for the night prior to or after surgery is not necessary.
The surgeon should be aware that cardiac, hepatic, endocrine, and autonomic nervous system dysfunction occasionally occurs in patients with mitochondrial disease. However, in my experience surgical procedures in patients with mitochondrial disease are safe if appropriate fasting precautions are taken. Because of the aforementioned hypothetical complications, it is prudent that surgical procedures be performed in a major medical center.
Based upon antedotal reports, there may be an increased probability of malignant hyperthermia when patients with mitochondrial disease undergo surgical procedures. However, this has not been my experience in a large number of patients with mitochondrial diseases that have undergone biopsy, as well as more intensive surgical procedures, including cardiac transplant, abdominal surgery, etc. Because of this hypothetical risk, appropriate precautions (Dantrolene) should be readily available.
First surgery he went into rabdo
second surgery he lost the use of his leg and foot
So here we go again..... the date is on June 27th
I am powerless ....... OK so come what may we'll deal with it.
Zachary is followed by myself in CHLA Medical Genetics for an inborn error of mitochondrial energy metabolism. Clinical manifestations in Zachary include autism, cyclic vomiting, complex regional pain syndrome and rhabdomyolysis. Mitochondrial disorders decrease the ability to produce energy in adequate amounts, and typically involve those tissues with the highest energy demands. This letter discusses some precautions that are prudent to take when patients within this group of disorders undergo surgical procedures.
Patients with mitochondrial disease often are sensitive to fasting. Fortunately, the administration of IV D10 (with appropriate electrolytes) at least at a rate of maintenance has been associated with an absence of any fasting complications in patients with mitochondrial disease in my experience. The patient can be fasted overnight, with an IV placed and D10 administered starting in the early morning. The D10 containing IV fluid should be run throughout the pre-operative, operative, and post-operative phase until the child is able to adequately take enteral feedings. In the vast majority of cases, hospitalization for the night prior to or after surgery is not necessary.
The surgeon should be aware that cardiac, hepatic, endocrine, and autonomic nervous system dysfunction occasionally occurs in patients with mitochondrial disease. However, in my experience surgical procedures in patients with mitochondrial disease are safe if appropriate fasting precautions are taken. Because of the aforementioned hypothetical complications, it is prudent that surgical procedures be performed in a major medical center.
Based upon antedotal reports, there may be an increased probability of malignant hyperthermia when patients with mitochondrial disease undergo surgical procedures. However, this has not been my experience in a large number of patients with mitochondrial diseases that have undergone biopsy, as well as more intensive surgical procedures, including cardiac transplant, abdominal surgery, etc. Because of this hypothetical risk, appropriate precautions (Dantrolene) should be readily available.
First surgery he went into rabdo
second surgery he lost the use of his leg and foot
So here we go again..... the date is on June 27th
I am powerless ....... OK so come what may we'll deal with it.
Hospital Day
DSC04309
Originally uploaded by jippyjabber.
Things have changed... we have so many appointments....
We got the call the surgery is next week.
I 've got several appointments prior to that
lots of things to do .......
here we go!
Thursday, June 21, 2007
three minutes people!
DSC04321
Originally uploaded by jippyjabber.
I have no idea where he see this or why three minutes?? It must be all the" making of" on the tale end of the DVD's He has always loved the marker board. I don't know why. At least he is having fun and he's playing! I guess I better get him a camera!
Wednesday, June 20, 2007
Getto train
DSC04295
Originally uploaded by jippyjabber.
You were wondering how I do it?
I pull from the front!
Mostly, I avoid this and plan accordingly but we ran out of his fav chips and I paid the price for it!
Zach is an excellent shopper!
6 bags or French onion Sun CHips
6 bags of Funions
8 bags of gummie Lifesavers
4 boxes of red vines
1 case of sprite
1 case of diet coke plus for mommy ( thanks Zach)
1 bag of cheetos for the nanny or any cousin stopping by.
Tuesday, June 19, 2007
DSC04290
Originally uploaded by jippyjabber.
Saved by the book! This is the first photo in a series, three waiting rooms and one very very very good book. This doc was over an hour late. He's lucky I had a good book ( a very very very good book) to read or I would have been fuming mad..... He has done this before... I set my next appointment for a little later in the moring, so next time he'll be able to wake up! Ok check out the book.....a link to a little moie trailer is below the next picture , it's in red.... Ok here is my three waiting rooms and one good book post.
DSC04275
Originally uploaded by jippyjabber.
OK blogging is strange..... at least five bloggers I know, know the author of this book. Talk about a friend of friends... Lets see, Max, Pooks, Kitty, Brett, Rob..... Those are some quality votes for a book... so of course I put it on my list at Amazon......even though I am limiting my Amazon activity this one I am reading for pleasure. And It's like my addiction for Poker After Dark...(.I can't play the game but) the characters are awesome!
I am using Ms. Thea as model in this series I call three waiting rooms and one very very very good book.
Monday, June 18, 2007
He can walk so much better and for longer periods at a time with a brace on his foot.
I found out I can have some extensions made on the straps of his shoes.
Just a visit to a quality shoe repair will save me the cost of buying two different sizes of shoes. This gets hot in the summer so finding high quality sandals was a priority.
I got some Hush puppies sandals in a wide shoe store. On sale for about $80.00. How much have I spent /wasted on trial and error, looking for something that will work out that he is willing to wear?
Lets say I could probably pay rent with the last years shoe budget.
Ps that's the beautiful and helpful nanny in the back .... she just wrote a paper on Zach.... I hope she lets me post it. : )
BP Brad Pitt
DSC04277
Originally uploaded by jippyjabber.
I kept saying I saw Jesus in this picture but honestly it looks like someone else ...... the left foot is the face....... Do you see it?
Sunday, June 17, 2007
HAPPY FATHERS DAY
FOR ZACHARY I WOULD...........Zachary, I will be everything I can be for you baby
I would become a man
to father you
more than any mother ever has
I will father you
in the park
I will father you
at the zoo
I will father you
in the shadows
ward off nightmares
kill bugs
teach you to shave
I will father you
as deeply into your wounds as I can
to slay dragons there
my arms are stronger than a sailors
when they are around you
I father you
I love you
FOR ZACHARY I WOULD...........Zachary, I will be everything I can be for you baby
I would become a man
to father you
more than any mother ever has
I will father you
in the park
I will father you
at the zoo
I will father you
in the shadows
ward off nightmares
kill bugs
teach you to shave
I will father you
as deeply into your wounds as I can
to slay dragons there
my arms are stronger than a sailors
when they are around you
I father you
I love you
Friday, June 15, 2007
Go ask Alice
Go ask Alice
Originally uploaded by jippyjabber.
I have been freaking out but yeah..... I still get proactive and low and behold..... GOOD NEWS!
I got a surgery date of July 5th! With a plastic surgeon to work on Zach's mouth....removing wisdom teeth and hopefully placing an incisor into the right spot or pulling it..... this is the man who can save his tooth!
I went to the hosp. Got a new brace for his leg.....got a new perscription to increase his pain meds....stopped in to make them face me...... I looked the surgery scheduler right in the eye and said I had to come to increase his pain meds. Ok so there are seven pts. waiting for an opening. An opening came up today..... was she going to call me? NO! But face to face what can she do???
Listen, if someone said, this kid is more medically urgent than your kid...... I would wait.....It's just that competitive in to get good healthcare. I fought for it and I won. July 5th is in three weeks. I am ready and then we will recover and damn it .......this should be the last of teething issues!! ( I've said that for about four years now) This time I really mean it. Sometimes I wonder how the hell I can be such a mess and yet still do the right thing for Zach.... I just get so intense sometimes.... For lack of a better word..... I feel like saying a prayer....sending some love....to those seven other suffering kids waiting for their surgery..... Some mom's just can't call everyday and then show up when they feel tugged in that direction. But damn I am in tune! Rockstar mom! I took zach and the nanny and myself out for frozen yogurt on the way home! I did it...
Blessed+Art+Thou+lo
Blessed+Art+Thou+lo
Originally uploaded by jippyjabber.
This cracks me up but it also explains my day.....First I play saint and go to the hospital. We pick up a new brace for his leg. We pick up a new perscription because we are uping his dose. Then I have to take care of business. Zachary's TV broke and do did the lamp in his room.
My goodness defective or what? Over use still a lamp and a tv from the movie CARs should still be working. You know he uses movies to help him deal with pain. He watches animal planet waiting for the meds to kick in.
I wish I had the name of the arrtist that painted this photo ....I am going to come back and post the name.
Thursday, June 14, 2007
I know what I have to do
DSC04156
Originally uploaded by jippyjabber.
zachary is living dose to dose. Our main doctor is leaving.
I am forsee checking into the ER until they admit him and make the surgery happen.
He's bigger, he's suffering, I am scared for both of us.
I have one other choice try to get a waiting list at another hosp.
I am afraid the INS issue might get out of my control and get the authorizations canceled....it happens.
I have a new medication to start. I hate this process.
I think it's bad timing to do this. He's suffering and I won't be able to get a good read of this ....... It should work and it's very very expensive.! $4oo.oo...... it isn't covered automatically, I had to fight for it. I have to be careful because six perscriptions are covered and the rest I pay for...... I have to fill the expensive ones and pay for the cheaper ones myself.
Wednesday, June 13, 2007
Hug a whale
DSC04271
Originally uploaded by jippyjabber.
He is getting so big!
Zach was going over his car colection from the movies cars.
I guess he leaned over to hug his whale and fell asleep.
Every now and then a sleeping child does wonders for your soul.
Hey, doesn't a nap sound soo good?
Monday, June 11, 2007
So mom gets a chance to read The Cleaner by Brett Battles
So mom gets a chance to read The Cleaner by Brett Battles
Originally uploaded by jippyjabber.
To help put me out of my misery, Brett decided to send me an ARC (advance reading copy) of his book The Cleaner! Aw how sweet!
If you go to his website by 6pm tonight Mon. ( whatever day it is today....OMG) Leave the name of your all time favorite book and you are entered into the contest to win an ARC of The Cleaner!
Today's Contest! 4 ARC of The Cleaner
In order to get a chance to read a good bit of it ( which you'll be burning to do) I took Zach to the South Pasadena Library. We have never been in that library. It's a tree that has playdates with all the local toddlers, teens sit to text, artist come to sketch and moms come to breathe and read.
Thank you Brett! Jonathan Quinn is one very intriguing man ( and ladies trust me you'll like him!) You want to rip through the book but then again.....no, you want him to be your friend just a little while longer.
If you think in pictures and like a book that will let your mind roll film in your inner theatre, You'll love the way Brett writes!!! I love it!
Westside of the Library
Westside of the Library
Originally uploaded by jippyjabber.
I have never been inside the South Pasadena Library.
They have a coffee shop across the street though and that makes it a good day for both of us.
Sunday, June 10, 2007
Oh the Disney studio Fountain is heaven
Oh the Disney studio Fountain is heaven
Originally uploaded by jippyjabber.
What is better than the Disney Store? A Disney Store with Cherries!
I am so glad we are having some fun again! It's living dose to dose until the surgery but this is just minutes from the hospital. I can plan it out and make it work.....usually.....: )
Life is a bowl of cherries
Life is a bowl of cherries
Originally uploaded by jippyjabber.
Zachary gets VIP treatment, a bowl full of cherries. Then we finally found Sarge the car from the movie Cars! YAY!
Saturday, June 09, 2007
OK, mom can we go upstairs now?
OK, mom can we go upstairs now?
Originally uploaded by jippyjabber.
Sometime in May ( after I got overwhelmed but before I started drinking) Rob had a contest..... Take a pitcure of yourself with his book. This is my attempt to pick up where I left off. Doesn't Zach looked thrilled?
He wrote the book
Rob and his buddy Brett made a Pod cast about their shared love, no, not about me, about writing, reading, story telling, well, it's about Character.
Episode 1 - CHARACTER IS KING
I begged for more
Vroman's bookstore completely rocks!
Vroman's bookstore completely rocks!
Originally uploaded by jippyjabber.
I had wanted to buy Rob's book at a Mystery Book Shop. I had never been in that shop and it was a good reason to go. I finally made it to the Mystery Book Shop. A man vaguely reminded me of the Captian from Giigan's Island was helping ....I have to say it....The little old Lady from Pasadena.... I wanted to hug him watching how sweet he was to her.....then I wanted to kill him because they only carry out of print Mystery Books...... Holy Crap I better get to Vroman's! I got the last copy on the shelve but bonus it was a signed by the author!
PS Rob was a doctor in a past life... No actually, it looks a bit like Brad Pitt's cement autograph..... A combo of those two...
Last one on the shelf.....
Last one on the shelf.....
Originally uploaded by jippyjabber.
You might know Robert Gregory Browne as my "blog crush" ( imagine link to blog crush post) Of course I ordered his book from Amazon the first week it was released.......after some drama at my local Borders.
Why didn't I read Rob's book? This is getto Jippy stuff here....I used his book as payment for my nephews friend who came to my place and did some work on some bookshelves that are taken over by zach's toys.
I had a bag of books for his mom and sister and he kept eyeing Rob's book and making comments like, " I like to read too" So let him have it, I could not hold back after he played cars with Zach and told Zach, hey! you have to put the car 'Ramone 'in front because that's my name too.
Thursday, June 07, 2007
Wednesday, June 06, 2007
Tuesday, June 05, 2007
A miracle just in time
I am starting to get into the idea of change.
The panic and fear all went away with the hangover.
I am really proud of myself for being honest about my feelings.
Before I just died inside
Just prayed to a god I was furious at and laughed like a crazy person at the irony
I have a strange and powerful optimism
it just shows up and I think bright good thoughts and forget the bad quickly
with no proof I believe things will shake up and land in a better place.......hmmmmm
Zachary is really gettting very verbal lately
he's quoting commercials and he is taking those words into the world and other conversations
I am floored by this.........
I always wanted to talk with Zachary........
He has been helping me pick out shirts for him.
Now I can ask him do you want to wear the shirt with the tree on it or the sword shirt.
What timing for a miracle
I am starting to get into the idea of change.
The panic and fear all went away with the hangover.
I am really proud of myself for being honest about my feelings.
Before I just died inside
Just prayed to a god I was furious at and laughed like a crazy person at the irony
I have a strange and powerful optimism
it just shows up and I think bright good thoughts and forget the bad quickly
with no proof I believe things will shake up and land in a better place.......hmmmmm
Zachary is really gettting very verbal lately
he's quoting commercials and he is taking those words into the world and other conversations
I am floored by this.........
I always wanted to talk with Zachary........
He has been helping me pick out shirts for him.
Now I can ask him do you want to wear the shirt with the tree on it or the sword shirt.
What timing for a miracle
Monday, June 04, 2007
Sunday, June 03, 2007
I never wanted you to know I could be this weak.
I just am nothing
I wait for some strength to show up
from I don't know where.
I am so powerless
I suppose that's obvious
I am terrified of his pain sometimes
I make desicions based in fear
I cried so much
I never wanted you to know I cried
I wait, I am always waiting
this day is my life
I try to convince myself
so I use love it covers the waiting
but never his pain
I just am nothing
I wait for some strength to show up
from I don't know where.
I am so powerless
I suppose that's obvious
I am terrified of his pain sometimes
I make desicions based in fear
I cried so much
I never wanted you to know I cried
I wait, I am always waiting
this day is my life
I try to convince myself
so I use love it covers the waiting
but never his pain
Friday, June 01, 2007
I have heard that the deifinition of insanity is trying to do the same thing the same way over and over again........ Well, I am insane......... I am actually going to attempt the zoo again this morning....
We will have our day at the Zoo!
I am still reeling but maybe the zoo will snap me out of it.
although, I am destroyed over it .....I have made several phone calls and emails.
I mean if a bunch of pts are getting cut off they are will be trying to get on the same wating lists as Zach and well it's sad to be competitive here but I want on that list ASAP and on top. I just need help. You know it's because Zach changes from day to day and sometimes hour to hour. I have to be proactive.
We will have our day at the Zoo!
I am still reeling but maybe the zoo will snap me out of it.
although, I am destroyed over it .....I have made several phone calls and emails.
I mean if a bunch of pts are getting cut off they are will be trying to get on the same wating lists as Zach and well it's sad to be competitive here but I want on that list ASAP and on top. I just need help. You know it's because Zach changes from day to day and sometimes hour to hour. I have to be proactive.
Thursday, May 31, 2007
DOCTOR J CALLS
ME, WHY ARE YOU CALLING
DR. J. I AM LEAVING
ME, ARE THEY GETTING A NEW DOCTOR?
DR. J THEY ARE SHUTTING DOWN THE PAIN CLINIC
ME, PLEASE REFER ME SOMEWHERE
HANG UP...........CRY...........GO TO HAPPY HOUR GET DRUNK......... NUMB........... STILL NUMB.........SCARED TO BREATHE.......
I am begging the universe to not allow my life to return to how it was prior to meeting Dr. Joseph.
ME, WHY ARE YOU CALLING
DR. J. I AM LEAVING
ME, ARE THEY GETTING A NEW DOCTOR?
DR. J THEY ARE SHUTTING DOWN THE PAIN CLINIC
ME, PLEASE REFER ME SOMEWHERE
HANG UP...........CRY...........GO TO HAPPY HOUR GET DRUNK......... NUMB........... STILL NUMB.........SCARED TO BREATHE.......
I am begging the universe to not allow my life to return to how it was prior to meeting Dr. Joseph.
Wednesday, May 30, 2007
I am going to try the Zoo again today. My last attempt was a nightmare well nightmarish....... ( it can always be worse)
I need this surgery to come and go. He's living dose by dose and his diet is what ever won't hurt him to eat.
Now for some GOOD NEWS
Twice I have caught Zach reading. I was in the kitchen and I was going to make my famous boil chicken ( all I can do in the kitchen is boil water and drop in what I want to cook) So, I have a frozen bag of chiken breasts. I don't touch raw meat I don't know why......... it's yucky.
Zachary's says " Foster Farms" Then he talks a few lines from the commercial. ( a little branding logo reconginiton but that's great too)
Zach was asking for Animal Planet and I saw the TiVo recording.....so I clicked to see what it was..... ( 24, love that show)
Zachary says, " not FOX" OK I am thinking a little animal becasue he wants animal planet and he can't always read a word other than where he learned the word. He knows Fox on Sox....... but he recognised the words F... O......X.....
I said, Zach you are reading! He says, NO I am Not! yes, you are! NO I AM NOT! OK
So the next time he read something I gave him some straws to play with and said that's for nice reading..... He said oh good reading....thank you. ( lets save the bit about the straws for later)
I need this surgery to come and go. He's living dose by dose and his diet is what ever won't hurt him to eat.
Now for some GOOD NEWS
Twice I have caught Zach reading. I was in the kitchen and I was going to make my famous boil chicken ( all I can do in the kitchen is boil water and drop in what I want to cook) So, I have a frozen bag of chiken breasts. I don't touch raw meat I don't know why......... it's yucky.
Zachary's says " Foster Farms" Then he talks a few lines from the commercial. ( a little branding logo reconginiton but that's great too)
Zach was asking for Animal Planet and I saw the TiVo recording.....so I clicked to see what it was..... ( 24, love that show)
Zachary says, " not FOX" OK I am thinking a little animal becasue he wants animal planet and he can't always read a word other than where he learned the word. He knows Fox on Sox....... but he recognised the words F... O......X.....
I said, Zach you are reading! He says, NO I am Not! yes, you are! NO I AM NOT! OK
So the next time he read something I gave him some straws to play with and said that's for nice reading..... He said oh good reading....thank you. ( lets save the bit about the straws for later)
Monday, May 28, 2007
I feel like I am lieing if I don't tell all the painful things that are going on ...........
I feel like I will weaken myself if I talk about it........
I feel like I am ok and getting better and I am don't want to risk failing....
I feel like it's too soon to talk about it.......
I feel like avoiding reality.
I feel like telling you that I am thinking about you and you make me stronger and thank god for your support.
I feel like I will weaken myself if I talk about it........
I feel like I am ok and getting better and I am don't want to risk failing....
I feel like it's too soon to talk about it.......
I feel like avoiding reality.
I feel like telling you that I am thinking about you and you make me stronger and thank god for your support.
Tuesday, May 22, 2007
Monday, May 21, 2007
HELL SHOWED UP
He is in massie pain, he is hungery and can't eat enough. He is starting pubertry. He says WHAT? after everything I say.
IN the middle of the night when I desperately want to sleep for twenty mins. I started to think like this....I can't take it anymore. I am so tired. I don't want to do this anymore. Please let me sleep. I can't do this. I must sleep. Make him be quiet. Where is his father? What can I do? How long have I been doing this? This is hell. These thoughts are the thoughts of the devil herself.
SO I try to count because he used to fall asleep when I would count. I get to 39 and he paused so I keep saying 39, 39 , 39 , 39 , 39 Like a crazy person. But for some reason he just needed to cry.
If I could just transition his mind from yelling at me to any new idea even crying then maybe he'd calm down. He did he listened to me say 39 and then he cried.
I passed out for a little bit I mean I was just really at the end and I fell over asleep. I don't have it to go on so I just pass out.
Now he' s sleeping. I should be too. I can't I feel like crying myself. He's a new kind of miserable. Pain with a little puberty mixed in. Under all of his problems there is a very frustrated teenager who thinks his mom is preventing him from having fun. In his mind we could live at the Zoo. BUT WHY?
The zoo was a disaster and I am still paying for it.
His tooth is hurting so badly. He's yelling at me. He says BUT WHY? WHAT?? after every thing I say. He is trying to force his way. He's huge. I have several appointments this week. Including an In home visit.
I quit drinking coffee everyday. So today, in my hour of need. I am getting a sugar free vanilla latte from Coffee Tea and bean. My sister is on her way with it now. Can you think of anything better? I drank my protien shake and now I am going to have coffee.
Everything is going to be ok.......
He is in massie pain, he is hungery and can't eat enough. He is starting pubertry. He says WHAT? after everything I say.
IN the middle of the night when I desperately want to sleep for twenty mins. I started to think like this....I can't take it anymore. I am so tired. I don't want to do this anymore. Please let me sleep. I can't do this. I must sleep. Make him be quiet. Where is his father? What can I do? How long have I been doing this? This is hell. These thoughts are the thoughts of the devil herself.
SO I try to count because he used to fall asleep when I would count. I get to 39 and he paused so I keep saying 39, 39 , 39 , 39 , 39 Like a crazy person. But for some reason he just needed to cry.
If I could just transition his mind from yelling at me to any new idea even crying then maybe he'd calm down. He did he listened to me say 39 and then he cried.
I passed out for a little bit I mean I was just really at the end and I fell over asleep. I don't have it to go on so I just pass out.
Now he' s sleeping. I should be too. I can't I feel like crying myself. He's a new kind of miserable. Pain with a little puberty mixed in. Under all of his problems there is a very frustrated teenager who thinks his mom is preventing him from having fun. In his mind we could live at the Zoo. BUT WHY?
The zoo was a disaster and I am still paying for it.
His tooth is hurting so badly. He's yelling at me. He says BUT WHY? WHAT?? after every thing I say. He is trying to force his way. He's huge. I have several appointments this week. Including an In home visit.
I quit drinking coffee everyday. So today, in my hour of need. I am getting a sugar free vanilla latte from Coffee Tea and bean. My sister is on her way with it now. Can you think of anything better? I drank my protien shake and now I am going to have coffee.
Everything is going to be ok.......
Friday, May 18, 2007
Thursday, May 17, 2007
Zach's foot bone
Originally uploaded by jippyjabber.
These are Zachary's X Rays.
I was across the hall but could not resist snalling a photo and hoping you can tell it's a foot! We are off to the hospital today and we should have some blood test results in. Answers or more questions but at least things are dieng done and we are going forward.
The doc can blow up the zxray and really take a close look at the bones. It was kind of cool. I am not sure how much radiation I was exposed to that week. He also had mouth X rays taken as well as multiple X rays of his foot.
Thank you my best blog friends for your kindness. I actually think of you while I am waiting around there....obvisioulsy or I would not have wipped out my camera for such a thrilling shot of Zach's bones!
Tuesday, May 15, 2007
Thursday, I have to talk to the doctor about Zachary's penis.
I have emailed him reagarding this matter and I tell you, it's not something I want to talk about in person.
I tried to email the doctor to avoid talking to him about it. Today I got his response email.
"lets talk about this on Thurs during your follow up visit"
Help me!
Hello, doctor my son is just entering puberty. He doens' t want my help in the bath tub anymore. I am not sure if he is taking proper care of his penis. At this point I should be on the floor rolled over trying not to piss myself.
When my ex and I were at the hospital because of false labor which by the way was worse than my real labor. We happened to be next to a baby that had a botched circumcision. So they had to "CUT MORE OFF" The screams still haunt me and at that moment my ex and I delcared no way were we letting the military butchers cut off the end of our son's penis.
I didn't know I would be a single mother and I didn't know my son would be autistic and now he is a , hey don't touch me kind of kid. Now, I have to talk to doctors about a penis and circumcision. I don't have that kind of maturity.
Zach will look at me mortified and I will fall apart in laughter.
My grandfather warned me that the day would come where I payed for this. After Thursday I might have to call him up and tell him he was right! I hope not though.
I have emailed him reagarding this matter and I tell you, it's not something I want to talk about in person.
I tried to email the doctor to avoid talking to him about it. Today I got his response email.
"lets talk about this on Thurs during your follow up visit"
Help me!
Hello, doctor my son is just entering puberty. He doens' t want my help in the bath tub anymore. I am not sure if he is taking proper care of his penis. At this point I should be on the floor rolled over trying not to piss myself.
When my ex and I were at the hospital because of false labor which by the way was worse than my real labor. We happened to be next to a baby that had a botched circumcision. So they had to "CUT MORE OFF" The screams still haunt me and at that moment my ex and I delcared no way were we letting the military butchers cut off the end of our son's penis.
I didn't know I would be a single mother and I didn't know my son would be autistic and now he is a , hey don't touch me kind of kid. Now, I have to talk to doctors about a penis and circumcision. I don't have that kind of maturity.
Zach will look at me mortified and I will fall apart in laughter.
My grandfather warned me that the day would come where I payed for this. After Thursday I might have to call him up and tell him he was right! I hope not though.
Monday, May 14, 2007
I hope you had a Happy Mothers Day!
We started out going for our traditional movie marathon and ended up with the traditional Nap.
He is going teen ager on me and that means better movies! But less room on the couch.
We had some fun and I hope you all did too.
I have three days until my next doctors apointment! What am I going to do? Laundry! Also I hope to finish with this closet and book purging I started.
Why do I make a bigger mess when my intention is to clean? I still have too many things. I am trying to get rid of all nic nacks...... this is insane. I don't mind book ends or picture frames a few candle sticks but the rest...... what is the point?
Of course I have to start thinking about who gave it to me and then I know I am in trouble.
It's a huge mess here. I know I will be glad that I took the time to sort and donate instead of just throwing things out. This is better for the environment. Good for the janitors kids who have nothing and some of Zach's stuff is brand new.
I used to buy things out of desperate hope that it would help him or work for us. Hell, I used to buy stuff just to get him to leave the store with me. Only for him to never touch it agian. Oh I am glad to say goodbye to the those times and stuff that came with it.
Lets face it. I am making room for my future. A bigger kid, with bigger toys and bigger fits.
We started out going for our traditional movie marathon and ended up with the traditional Nap.
He is going teen ager on me and that means better movies! But less room on the couch.
We had some fun and I hope you all did too.
I have three days until my next doctors apointment! What am I going to do? Laundry! Also I hope to finish with this closet and book purging I started.
Why do I make a bigger mess when my intention is to clean? I still have too many things. I am trying to get rid of all nic nacks...... this is insane. I don't mind book ends or picture frames a few candle sticks but the rest...... what is the point?
Of course I have to start thinking about who gave it to me and then I know I am in trouble.
It's a huge mess here. I know I will be glad that I took the time to sort and donate instead of just throwing things out. This is better for the environment. Good for the janitors kids who have nothing and some of Zach's stuff is brand new.
I used to buy things out of desperate hope that it would help him or work for us. Hell, I used to buy stuff just to get him to leave the store with me. Only for him to never touch it agian. Oh I am glad to say goodbye to the those times and stuff that came with it.
Lets face it. I am making room for my future. A bigger kid, with bigger toys and bigger fits.
Thursday, May 10, 2007
Zach was fitted for a new brace. I am so glad because I cast is not going to work.
We have to do weight bearing excercises. This is kind of good for me becaue I 've been dieting and just getting a work out started. We'll do it together now. Also, he will be able to swim this summer.
I think they will go ahead and take out his wisdom teeth on this next mouth surgery. This would make it necessary for us to stay a few days in the hospital but it will be the end of tooth extractions and teething issues. I am glad to know this is in the works. Something will be over with. OH what a feeling!
So we've got so many tests out at the labs. Hoping to get some answers in a couple of weeks.
It was crueling at the hospital and yet I think it saved our summer by having all the docs weigh in on this leg issue. It's just not ok to imobilize him. Poor kid can not escape the pain.
He's cute, he is learning that mom can be "just joking" It is very sweet to see the wheels turning in his head and see him come back and tell me, " Are you joking?"
We have to do weight bearing excercises. This is kind of good for me becaue I 've been dieting and just getting a work out started. We'll do it together now. Also, he will be able to swim this summer.
I think they will go ahead and take out his wisdom teeth on this next mouth surgery. This would make it necessary for us to stay a few days in the hospital but it will be the end of tooth extractions and teething issues. I am glad to know this is in the works. Something will be over with. OH what a feeling!
So we've got so many tests out at the labs. Hoping to get some answers in a couple of weeks.
It was crueling at the hospital and yet I think it saved our summer by having all the docs weigh in on this leg issue. It's just not ok to imobilize him. Poor kid can not escape the pain.
He's cute, he is learning that mom can be "just joking" It is very sweet to see the wheels turning in his head and see him come back and tell me, " Are you joking?"
Monday, May 07, 2007
Zachary has multiple fractures in his ankle and foot.
He needs a cast for at least six weeks. usually more with low bone desity.
The problem with a cast is that imobilizing his leg that has complex regional pain syndrome will worsen the complex regional pain syndrom. If I don't cast him he could heal wrong or do more damage to his bones.
Back to the hospital first things this morning. Looks like many vists are in my near future.
We see the dentist and then an orthopedic surgeon.
We went in early for blood test last week and the tests had to be sent out so it really wasn't as helpful as I thought it would be.
the results will most likely get us referred to an endocrinologist. One was consulted already, to help order the appropriate tests.
This is adding two more doctors to the five I see consitently already. Not to mention the fear of fragility fractures. This requires a change in lifestyle. Your ankle is one thing but the spine is not ........well..... I am not going to spell it out .....everyone knock on wood right now.
He needs a cast for at least six weeks. usually more with low bone desity.
The problem with a cast is that imobilizing his leg that has complex regional pain syndrome will worsen the complex regional pain syndrom. If I don't cast him he could heal wrong or do more damage to his bones.
Back to the hospital first things this morning. Looks like many vists are in my near future.
We see the dentist and then an orthopedic surgeon.
We went in early for blood test last week and the tests had to be sent out so it really wasn't as helpful as I thought it would be.
the results will most likely get us referred to an endocrinologist. One was consulted already, to help order the appropriate tests.
This is adding two more doctors to the five I see consitently already. Not to mention the fear of fragility fractures. This requires a change in lifestyle. Your ankle is one thing but the spine is not ........well..... I am not going to spell it out .....everyone knock on wood right now.
Sunday, May 06, 2007
Zach and Mattie
Another day at the hospital.......
What makes it tolerable? A dog of course!
Mattie's story
Love on 4 paws is a terrific organization. The kids really do feel better after petting the dogs.
I often think that one day Zach will have a dog and we will be able to visit seniors or kids stuck in the hospital. I will never forget the first dog Zach met at a Hospital. It happened to be at Huntington Hosp. I had called 911 because he was turning blue. He had not slept for days. They admitted us and a dog camee to visit. I threw a blanket on the floor. The dog and Zach laid down and for the first time in days and days, Zachary fell asleep. So did the dog!
We've met Mattie before. We have a picture of zach and Mattie on the cell phone. So Zach was comfortable with her and took her leash and walked her around the waiting room and told her she was a good girl.
Mattie is a featured story on www.Loveon4Paws.org go check it out.
if you have a sweet dog and are interested in volunteering, you will find information on that on the site.
What makes it tolerable? A dog of course!
Mattie's story
Love on 4 paws is a terrific organization. The kids really do feel better after petting the dogs.
I often think that one day Zach will have a dog and we will be able to visit seniors or kids stuck in the hospital. I will never forget the first dog Zach met at a Hospital. It happened to be at Huntington Hosp. I had called 911 because he was turning blue. He had not slept for days. They admitted us and a dog camee to visit. I threw a blanket on the floor. The dog and Zach laid down and for the first time in days and days, Zachary fell asleep. So did the dog!
We've met Mattie before. We have a picture of zach and Mattie on the cell phone. So Zach was comfortable with her and took her leash and walked her around the waiting room and told her she was a good girl.
Mattie is a featured story on www.Loveon4Paws.org go check it out.
if you have a sweet dog and are interested in volunteering, you will find information on that on the site.
Wednesday, May 02, 2007
Dr. G
Hey, Jen. Can you come in tomorrow? Can you come in and go to the lab first so we have the results by the time I see you?
Me, yes, Thank you
Dr. G. I've called a cople of Docs to see if they can see Zach in house. If they can't you'll have to go to the Ortho Hospital.
Me, OK, Thank you.
Me. Google low bone minerization in children.
I predict nothing shows up on the tests and that would be good news. More mystery is better than a known cause in this case.
Hey, Jen. Can you come in tomorrow? Can you come in and go to the lab first so we have the results by the time I see you?
Me, yes, Thank you
Dr. G. I've called a cople of Docs to see if they can see Zach in house. If they can't you'll have to go to the Ortho Hospital.
Me, OK, Thank you.
Me. Google low bone minerization in children.
I predict nothing shows up on the tests and that would be good news. More mystery is better than a known cause in this case.
Tuesday, May 01, 2007
Doctor called got my voice mail,
Jen x rays don't look good. You have to go to Ortho. Keep zach limited mobilty. We are thinking of a cast. Please email me with an update on how he is.
Talk to you soon.
Doctor G
What I am thinking...... I do not what to do summer in a cast....we need to swim......why the hell didn't I move to a lower lever?
OMG I have been letting Zach walk! I am in a visicous cycle of guilt and revocovery to motivation to bad news..... numb........to guilt...... to motivated......to bad news......... numb. Ok, just fight for a brace that comes off and then worry about cycle later.
Damn you salizar! ( anyone know where this saying comes from?)
Jen x rays don't look good. You have to go to Ortho. Keep zach limited mobilty. We are thinking of a cast. Please email me with an update on how he is.
Talk to you soon.
Doctor G
What I am thinking...... I do not what to do summer in a cast....we need to swim......why the hell didn't I move to a lower lever?
OMG I have been letting Zach walk! I am in a visicous cycle of guilt and revocovery to motivation to bad news..... numb........to guilt...... to motivated......to bad news......... numb. Ok, just fight for a brace that comes off and then worry about cycle later.
Damn you salizar! ( anyone know where this saying comes from?)
Monday, April 30, 2007
Jippy U make me sick!
I got this comment on the video of zachary twenty seconds of pain. I checked it out and it came from a kid so I said I didn't mind. One comment led to another and someone chimed in to defend me and I said this is a kid standing up for another kid. ......... eventually I got this email from him...... I had aready told him I thought he was a hero and would make a good big brother. He stood up for zach not knowing him and thinking ( and I see why) it was horrible of a mother to put this video up on the internet. Dillion is 13 with A D H D ... he is sweet!
hello i posted another comment it didnt post it could have ben 2 long ... i said i was sorry 4 what i said 2 U i just wanted U 2 know that i have A cousin hes 12 hes retareded my aunt has 2 dress him & wash him he still wears diapers he can walk & say A few words hes verry smart in his own way i have A D H D i can get wackyyyy sometimes my cousin hits him self & he bangs his head on the wall ... when i saw the video of zach i just thought is was some kids my age play fighting like i do with my sister & lil brother when i seen it i felt bad & sorry 4 him its how i am i really cryed when i seen that it really hurt me i just dont think is was right 2 post that on the internet 4 the whole world 2 see but i showed it 2 my mother & she told my why just like U say its 2 help other's if U have msn messenger plzz add me add me ........@hotmail.com or yahoo messenger ...........@yahoo.com or aim .............. plzz read this 2 zach 4 me im sure he cant read but thats ok .. hi zach i hope U get well soon & i hope all your pain goes Away even know i dont know U but my hart goes out 2 U love Dillon
I got this comment on the video of zachary twenty seconds of pain. I checked it out and it came from a kid so I said I didn't mind. One comment led to another and someone chimed in to defend me and I said this is a kid standing up for another kid. ......... eventually I got this email from him...... I had aready told him I thought he was a hero and would make a good big brother. He stood up for zach not knowing him and thinking ( and I see why) it was horrible of a mother to put this video up on the internet. Dillion is 13 with A D H D ... he is sweet!
hello i posted another comment it didnt post it could have ben 2 long ... i said i was sorry 4 what i said 2 U i just wanted U 2 know that i have A cousin hes 12 hes retareded my aunt has 2 dress him & wash him he still wears diapers he can walk & say A few words hes verry smart in his own way i have A D H D i can get wackyyyy sometimes my cousin hits him self & he bangs his head on the wall ... when i saw the video of zach i just thought is was some kids my age play fighting like i do with my sister & lil brother when i seen it i felt bad & sorry 4 him its how i am i really cryed when i seen that it really hurt me i just dont think is was right 2 post that on the internet 4 the whole world 2 see but i showed it 2 my mother & she told my why just like U say its 2 help other's if U have msn messenger plzz add me add me ........@hotmail.com or yahoo messenger ...........@yahoo.com or aim .............. plzz read this 2 zach 4 me im sure he cant read but thats ok .. hi zach i hope U get well soon & i hope all your pain goes Away even know i dont know U but my hart goes out 2 U love Dillon
Saturday, April 28, 2007
Friday, April 27, 2007
The cute story.
On the way home we see a Hersey kiss car. Like the Oscar Meyer weiner car but with three kisses.
We stop becasue it looks fun. zach plays some game and it turns out to be a fund raiser for Children's Hosp. " I just came from there" I fill out a form to win..... I don't even know what. .... so she hands me a mic and says look in the camera and say this...... I said what for? Oh just two people will see it so the judges know who you are. OK I can't leave Zach is into it.
I am now entered into the sweetest mom in America contest. I say Hi my name is Jennifer I am from Pasadena. Zach grabs the mic and says and " I am Mr. Zachary" Oh it was sooo cute! I am Mr. Zachary from Pasadena! I was so into that .....I nothing more to say to the camera but I like the traditional kisses. I give them out for no reason at all........
As soon as it was over I kept thinking everyones knows the best kisses come from mom and hershey's ...... I called a friend and told her to go do it and say that......she said, I can't I have PMS......I said good its free chocolate! LOL
Kissmobile Click around you can enter with a video of yourself and my slogan is up for grabs!
On the way home we see a Hersey kiss car. Like the Oscar Meyer weiner car but with three kisses.
We stop becasue it looks fun. zach plays some game and it turns out to be a fund raiser for Children's Hosp. " I just came from there" I fill out a form to win..... I don't even know what. .... so she hands me a mic and says look in the camera and say this...... I said what for? Oh just two people will see it so the judges know who you are. OK I can't leave Zach is into it.
I am now entered into the sweetest mom in America contest. I say Hi my name is Jennifer I am from Pasadena. Zach grabs the mic and says and " I am Mr. Zachary" Oh it was sooo cute! I am Mr. Zachary from Pasadena! I was so into that .....I nothing more to say to the camera but I like the traditional kisses. I give them out for no reason at all........
As soon as it was over I kept thinking everyones knows the best kisses come from mom and hershey's ...... I called a friend and told her to go do it and say that......she said, I can't I have PMS......I said good its free chocolate! LOL
Kissmobile Click around you can enter with a video of yourself and my slogan is up for grabs!
Thursday, April 26, 2007
I waited and I waited and I waited.
A waiting room isn't a nursery. I know you want to sit down veg out and let your kids roam.
I broke up two fights. I got pushed out of the way by someone who ignored their child long enuogh for him to trample over three of us to get to the kid holding the remote for the nintendo game. I mentioned to a women three times that her kid just might have to go to the bathroom. Finally, she looks at her kid who was ummmmm picking his seat. Later, I see her coming out of the bathroom and she smiles at me like I had magical powers of the a child wisperer....He did have to go! ( oh boy!)
Why oh why can't they say hi. You come to this country, you have children here. You are going to a place where other children don't need to feel any worse than they already do. Please learn how to say hi or at least put a freaking smile on your face. I understnd enough spanish to know that you are laghing at how you think what you are saying is going right over my head. How even your child understands you. Wake up you are in America. Funny thing is.... everyone else noticed that I did know what you were saying. You are oblivious! When your kid comes to steal my kids toy and my kid smiles and says hi........the least you can do is say hi back. Oh yeah take a shower before you go out in public....
I had asked the dentist if they could lower this tooth into place and not pull it and they laughed at me and told me they don't do that. OF course what did the surgeon suggest they'd try first? Placing the tooth in the proper position. Bad news it will take four to six weeks to get a surgery date..... what the?
So basically I will be monitoring a chemical straight jacket becasue the pain is getting so bad. I wonder what if this tooth breaks out. This will be so messed up. No wonder I am bitching about waiting room behavior..... I also started raggin about my freinds boyfriend instead of comforting her. Arg. I am just tired and looking at super human feat coming up.
Did I mention I have been dieting and working out? Zach isn't too happy about this crap.
I have to go back tomorrow. I do not want too. Did I mention that they sent me to xray his leg today. He has osteropeana so that's low calcium of the bones. So he's getting ready to go to rehad and I by the time his name comes up he'll be full on crazy tooth pain.
Ok I'll stop bitching. I have a sweet story too.
A waiting room isn't a nursery. I know you want to sit down veg out and let your kids roam.
I broke up two fights. I got pushed out of the way by someone who ignored their child long enuogh for him to trample over three of us to get to the kid holding the remote for the nintendo game. I mentioned to a women three times that her kid just might have to go to the bathroom. Finally, she looks at her kid who was ummmmm picking his seat. Later, I see her coming out of the bathroom and she smiles at me like I had magical powers of the a child wisperer....He did have to go! ( oh boy!)
Why oh why can't they say hi. You come to this country, you have children here. You are going to a place where other children don't need to feel any worse than they already do. Please learn how to say hi or at least put a freaking smile on your face. I understnd enough spanish to know that you are laghing at how you think what you are saying is going right over my head. How even your child understands you. Wake up you are in America. Funny thing is.... everyone else noticed that I did know what you were saying. You are oblivious! When your kid comes to steal my kids toy and my kid smiles and says hi........the least you can do is say hi back. Oh yeah take a shower before you go out in public....
I had asked the dentist if they could lower this tooth into place and not pull it and they laughed at me and told me they don't do that. OF course what did the surgeon suggest they'd try first? Placing the tooth in the proper position. Bad news it will take four to six weeks to get a surgery date..... what the?
So basically I will be monitoring a chemical straight jacket becasue the pain is getting so bad. I wonder what if this tooth breaks out. This will be so messed up. No wonder I am bitching about waiting room behavior..... I also started raggin about my freinds boyfriend instead of comforting her. Arg. I am just tired and looking at super human feat coming up.
Did I mention I have been dieting and working out? Zach isn't too happy about this crap.
I have to go back tomorrow. I do not want too. Did I mention that they sent me to xray his leg today. He has osteropeana so that's low calcium of the bones. So he's getting ready to go to rehad and I by the time his name comes up he'll be full on crazy tooth pain.
Ok I'll stop bitching. I have a sweet story too.
Wednesday, April 25, 2007
It's that day again. I am trying to be in the now. Fit my healthy lifstyle into this hospital situatioin.
I really just want it over and to be having a good summer.
I see the surgeon and he is the man I need to talk too. I have two appointments Thurs. and one on Friday.
I hope I get sleep tonight. I am so tired and I want to be sharp when I talk to the docs.
I really just want it over and to be having a good summer.
I see the surgeon and he is the man I need to talk too. I have two appointments Thurs. and one on Friday.
I hope I get sleep tonight. I am so tired and I want to be sharp when I talk to the docs.
Tuesday, April 24, 2007
A Bicycle Dream
A Bicycle Dream
Originally uploaded by jippyjabber.
Zachary's Red Racer
It's on a trainer in his room. He is in love. He had a photo of this bike on the fridge for of couple years. He updated the photo and took care to point it out to me. He is a fan of the movie Triplets of Bellville. The boy in the movie has many autistic qualities. He has a red race bike and he rides in the Tour De France. I think Zach identifies with him. He wants a dog named Bruno too. One dream at a time kid. .....
Sunday, April 22, 2007
Friday, April 20, 2007
Three times a charm at Children's Hospital.
I have to go back three times next week.
I spent the day there yesterday.
I talked to the doctor on the phone last night.
We have a plan for the weekend.
I have to change Zach's diet again.
It's just like old times.
GOOD NEWS!
I mean you can't know how good this is for us. We went down the street to the Disney store on Hollywood Blvd.
We found the blue Dynaco lightening Mcqueeen car! the little one This has been a source of nightmares for me. Now I just need to find Sarge and Filmore. LOL
Poor Zach, We were just outside the Disney store he's having a pain episode and we can't get out of the car. If ever anyone thought this was a tantrum . You know what kid pitches a fit delaying going in the store he wants, to buy basicallly what ever he wants..... We had a twenty minute window and we ran in and scored! He fell apart again and it took a long time to get home but when we did and added the new car to our collection He told me it was perfect.
awwww
I have to go back three times next week.
I spent the day there yesterday.
I talked to the doctor on the phone last night.
We have a plan for the weekend.
I have to change Zach's diet again.
It's just like old times.
GOOD NEWS!
I mean you can't know how good this is for us. We went down the street to the Disney store on Hollywood Blvd.
We found the blue Dynaco lightening Mcqueeen car! the little one This has been a source of nightmares for me. Now I just need to find Sarge and Filmore. LOL
Poor Zach, We were just outside the Disney store he's having a pain episode and we can't get out of the car. If ever anyone thought this was a tantrum . You know what kid pitches a fit delaying going in the store he wants, to buy basicallly what ever he wants..... We had a twenty minute window and we ran in and scored! He fell apart again and it took a long time to get home but when we did and added the new car to our collection He told me it was perfect.
awwww
Thursday, April 19, 2007
Hospital Day.
Zach is up and down and up and down. Thank god for the internet. I 've been online causing trouble. Also just sitting with him playing nurse. He is so sweet one minute and then tooth pain kicks in and well you've seen that video.
He can still hobble around and that is the most important thing.
PROGRESS ON MY VIDEO WORK!!!! I am doing editing tutorials on my computer. I have a couple of different formats in video and I have to convert them to digital. I just need to do this before I make other decisions. So I am watching the videos and imagine the teachers naked. JUST kidding!
Also boxing up books for the library.
My little joke of a work out program but I just wanted to give it a slot of time and see if I can keep it a priority. As long as Zach isn't in the Hosp. I am forcing myself into the equation of health and well being.
Zach is up and down and up and down. Thank god for the internet. I 've been online causing trouble. Also just sitting with him playing nurse. He is so sweet one minute and then tooth pain kicks in and well you've seen that video.
He can still hobble around and that is the most important thing.
PROGRESS ON MY VIDEO WORK!!!! I am doing editing tutorials on my computer. I have a couple of different formats in video and I have to convert them to digital. I just need to do this before I make other decisions. So I am watching the videos and imagine the teachers naked. JUST kidding!
Also boxing up books for the library.
My little joke of a work out program but I just wanted to give it a slot of time and see if I can keep it a priority. As long as Zach isn't in the Hosp. I am forcing myself into the equation of health and well being.
Wednesday, April 18, 2007
celuloid_blonde_award_ii
Originally uploaded by jippyjabber.
Celuloid Blonde Award
Celluloid Blonde Award
I HAVE TO FIX A LINK AND PUT IN THE CREDITS..... I AM NOT DONE HERE.
My favorite posts from my Link toos.......... AKA blog roll..............
Celluloid Blonde Read every word she writes. Here is something she wrote on love. You might find yourself there, captured in a couple of words. My favorite post of hers changes all the time. I went with the first one that came to mind. Love, I swear to god I am not thinking about love, not in any way. Except maybe this, read Max, you'll love her! I have to say, with Max, Never Judge a Post by it's Cover! The gold is in the comments. ( PS be careful she' not tolerant of ......well, just go find out for yourself.)
The Show Must Go On I am just going to link to her current post. It sums up who she is so well. She is fun, cool and sentimental. Her heart just makes yours open. She's an experience. She's got energy, she is keeping up with her teenagers and she's living large in her own world. I want to be able to do that. She gave me the secret code to get a hold of her on the down low. You know what I mean, that's sweet, sweet, sweet.
A Family Story She is the last person you would think would be getto cool but she is...... GO SEE! She does a fun thing every Monday. A different person is in charge of it every Mon. She has Picture Fridays. The cutest little girls in the world! Confessions of a working mom " I have totally crawled into Audreys crib to get her to sleep once or twice. " She totally posted about my little man Zach. I love her just for that. She surprised me when she went out on a limb and got a little controversial. She got lots of comments and many bloggers express their points of view on her post, SHould pre-school be mandatory? She gets a humanitarian award from me. I said this before, If I was her, I would be a snotty biotch. She could be but instead she opens her world and shares it freely. I so enjoy knowing her.
Moving J Wards, I am linking to her video and you really should vote for it. Zach made is own response to it ( that's You Tube Talk ) Her Toby is an Extra cute baby! I expect great things from this woman. She has the gift of discernment. I don't know what that means but I like how she interprets things. if I ever make it Oprah she promises to come and hold my purse or pass out tissues. One post I loved was when she grabbed the green food coloring instead of vanilla while making oatmeal cookies. LOL I laughed so hard when I saw the green cookies on her blog. Another favorite post of hers is ......buying a lie. You've got to click around on her blog. I predict she will write a novel one day. I don't know why I just think she will.
In My Shoes my favorite post of hers is called' hello 'because she finally after three years got a communication device appraoved for PARTIAL payment from her insurance company. I also loved that she put up the Zachary badge on her site. I am having trouble linking to my post so it's a general link but you are so lucky becasue if you scroll down to April 12. "coming up for Air" you'll see she gives me a big thank you and a shout out! LOL you can't miss it! She is going through a lot and she has been a huge support to me.
Pooks AKA The green goddes. Writers Do You Suffer? You'll see the post came from a question from a student ( I think) How kind of her to make it a post and then..... she helped me personally, answering a question I had in the comments. How generous. I learned about the green miles, when she takes her bike instead of driving. I am freakin hauted right now because she wrote another post about writing or it's kind of how the her brain works while writing.... something like that and I loved it. Maybe I will find it later.
LOLO LOLO is my BFF So, I have to mention her here. She is a CRAPTASTIC! blogger. I mean it. She can go forever with out posting. Also it Is a covert operation so people she knows don't know it's hers and she can say anything. We talk in code because we like it. To stay out of trouble. Her blog sends her emails to her work computer so it's almost been taken over by me trying to get the her to call me. What the fuck call more often! I am kidding. sort of... My favorite post of hers is, The Shift, just skip to the end where she says I am so smart! : )
Tuesday, April 17, 2007
Zach does Kill My TV ( a response)
This is a video response, go vote for the original Give it a High Five A star is born!
Has it come to a world where our campus have to have Gunman Loose on Campus Drills and Procedures?
Amy, is a A Hoki fan is a Virginia Tech Alum. She is "worse" than Pooks who is a foot ball fan, mostly Cowboys. ( I tried to link to one her Pooks football posts but It didn't work.)
*****If this stuff is too sad, like you've seen it over and over again on the news..... just hit the Pooks link and stay there. Her Payton Manning video will make you laugh. You know what I just for one day, I'd want to put Zach on his team.....I already know what would happen....Zach would tackle him to the ground......that might be funny too**********
I am just learning about teams and fans. I didn't know what I was missing out on. With the joy of victory comes the agony of defeat. And today the pain of loss..... I am not sure if any of us can ever understand. Virginia Tech has now replaced the University of Texas Austin for the record of the largest killing spree on a campus. It's very very sad.
Amy is really compassionate and sweet and I know she is sick over this tragic situation. Aren't we all?
This blog was up yesterday, I have no idea how they could know all of this
I just hope to present this and hope that when we read it, we somehow, in sharing her appreciation for and her celebration of Virginia Tech, that we help these kids, teachers and their families with our good thoughts.
Amy's VT Posts
Now more stuff I stole from Amy for this tribute. ( hopefully A picture will follow)
The origin of the word "Hokie" has nothing to do with a turkey. It was coined by O. M. Stull (class of 1896), who used it in a spirit yell he wrote for a competition.
Hoki, Hoki, Hoki, Hy.
Techs, Techs, V.P.I.
Sola-Rex, Sola-Rah.
Polytechs - Vir-gin-ia.
Rae, Ri, V.P.I.
(V.P.I. stands for Virginia Polytechnic Institute).
The Hokie Bird, is modeled on a large turkey, has been the official sport mascot of Virginia Tech since 1961.
Amy, is a A Hoki fan is a Virginia Tech Alum. She is "worse" than Pooks who is a foot ball fan, mostly Cowboys. ( I tried to link to one her Pooks football posts but It didn't work.)
*****If this stuff is too sad, like you've seen it over and over again on the news..... just hit the Pooks link and stay there. Her Payton Manning video will make you laugh. You know what I just for one day, I'd want to put Zach on his team.....I already know what would happen....Zach would tackle him to the ground......that might be funny too**********
I am just learning about teams and fans. I didn't know what I was missing out on. With the joy of victory comes the agony of defeat. And today the pain of loss..... I am not sure if any of us can ever understand. Virginia Tech has now replaced the University of Texas Austin for the record of the largest killing spree on a campus. It's very very sad.
Amy is really compassionate and sweet and I know she is sick over this tragic situation. Aren't we all?
This blog was up yesterday, I have no idea how they could know all of this
I just hope to present this and hope that when we read it, we somehow, in sharing her appreciation for and her celebration of Virginia Tech, that we help these kids, teachers and their families with our good thoughts.
Amy's VT Posts
Now more stuff I stole from Amy for this tribute. ( hopefully A picture will follow)
The origin of the word "Hokie" has nothing to do with a turkey. It was coined by O. M. Stull (class of 1896), who used it in a spirit yell he wrote for a competition.
Hoki, Hoki, Hoki, Hy.
Techs, Techs, V.P.I.
Sola-Rex, Sola-Rah.
Polytechs - Vir-gin-ia.
Rae, Ri, V.P.I.
(V.P.I. stands for Virginia Polytechnic Institute).
The Hokie Bird, is modeled on a large turkey, has been the official sport mascot of Virginia Tech since 1961.
Monday, April 16, 2007
A blog buddy did this and we have to vote for them so they can have a new TV
http://h30044.www3.hp.com/hptv/home/View.aspx?entryId=140
A place to vote give it a five on the rating it deserves it!
Give it a High Five
moving j-wards the good people who made this
Best Actress
Best Director
Best Baby
Best song
Although, I don't ever want to piss these people off. Their aim is too good. So vote everyday, it's allowed.
Saturday, April 14, 2007
What is a Mitochondrial Disorder?
Basis of the Disease
Mitochondrial diseases result from failures of the mitochondria, specialized compartments present in every cell of the body except red blood cells. Mitochondria are responsible for creating more than 90% of the energy needed by the body to sustain life and support growth. When they fail, less and less energy is generated within the cell. Cell injury and even cell death follow. If this process is repeated throughout the body, whole systems begin to fail, and the life of the person in whom this is happening is severely compromised. The disease primarily affects children, but adult onset is becoming more and more common.
Diseases of the mitochondria appear to cause the most damage to cells of the brain, heart, liver, skeletal muscles, kidney and the endocrine and respiratory systems.
Depending on which cells are affected, symptoms may include loss of motor control, muscle weakness and pain, gastro-intestinal disorders and swallowing difficulties, poor growth, cardiac disease, liver disease, diabetes, respiratory complications, seizures, visual/hearing problems, lactic acidosis, developmental delays and susceptibility to infection.
So we are focused on quality of life here.
Basis of the Disease
Mitochondrial diseases result from failures of the mitochondria, specialized compartments present in every cell of the body except red blood cells. Mitochondria are responsible for creating more than 90% of the energy needed by the body to sustain life and support growth. When they fail, less and less energy is generated within the cell. Cell injury and even cell death follow. If this process is repeated throughout the body, whole systems begin to fail, and the life of the person in whom this is happening is severely compromised. The disease primarily affects children, but adult onset is becoming more and more common.
Diseases of the mitochondria appear to cause the most damage to cells of the brain, heart, liver, skeletal muscles, kidney and the endocrine and respiratory systems.
Depending on which cells are affected, symptoms may include loss of motor control, muscle weakness and pain, gastro-intestinal disorders and swallowing difficulties, poor growth, cardiac disease, liver disease, diabetes, respiratory complications, seizures, visual/hearing problems, lactic acidosis, developmental delays and susceptibility to infection.
So we are focused on quality of life here.
Friday, April 13, 2007
Zach has given himself a black eye and maybe broke his nose. I put frozen peas on his face and I'll see what it looks like tomorrow. He can heal fast with things like this so it could be fine tomorrow. It just looked really bad. He's much bigger now than when he was going through this teething, mouth pain.
I got ready for it today. I have everything I need to handel it here. If he breaks through all of his meds and all of my tricks then I'll try to get him to Children's Hopital or I'll call 911. I have had to do that twice before because he was turning blue. I could not get him stable. He gets some morphine and hopefully sleep.
Now that I wrote this and took into consideration that he is bigger, the doc can go higher on the pain meds. There are increased right now but I have no idea what the limit is so I won't shy away from calling the doctor. I hate to call them.
I have even stocked up on some food for me. I am trying to be really strong and healthy during the hard times. I haven't pulled it off in the past and quit trying.
The best part about this is that it's the last tooth until his molars become a problem. I used to do this ......well for years one tooth after another and it was a violent hell. So one more time............
It will be ok.
I got ready for it today. I have everything I need to handel it here. If he breaks through all of his meds and all of my tricks then I'll try to get him to Children's Hopital or I'll call 911. I have had to do that twice before because he was turning blue. I could not get him stable. He gets some morphine and hopefully sleep.
Now that I wrote this and took into consideration that he is bigger, the doc can go higher on the pain meds. There are increased right now but I have no idea what the limit is so I won't shy away from calling the doctor. I hate to call them.
I have even stocked up on some food for me. I am trying to be really strong and healthy during the hard times. I haven't pulled it off in the past and quit trying.
The best part about this is that it's the last tooth until his molars become a problem. I used to do this ......well for years one tooth after another and it was a violent hell. So one more time............
It will be ok.
Thursday, April 12, 2007
D 10, sugar in the IV
A little sugar and a nap, It would help anyone. We got to go home but still not walking.
Wednesday, April 11, 2007
Sunday, April 08, 2007
Happy Easter!
Zach had a blast! He hurt his foot and his cousin gave him a piggy back ride while he called out the color of egg he saw and the other cousin picked up the eggs. These are older boy cousins and I didn't think they would want anything to do with Easter ............... What great kids they are. I held back the tears but my heart was so overwhelmed. In a good way. Looks like I am back to the wheel chair for a while.
I won't be around as much but I will try to check in. DOn't forget about me.......
Friday, April 06, 2007
JIPPY SAVES THE DAY
I just made of point of having fun. I am just having vacation envy.
I put some feelers out on a project and the main shark I work for ......well, I forgot his girlfriend is in the business too. Some dude with money keeps playing with them claiming he'll match funds......when he knows they can't get the rest of the money. Whatever, they keep wanting to keep projects for their big cross over deal. Actors eat up what little money they have to be held for a project but they won't sign a letter of intent or let you use their name to help raise money. Actors hate that........ It's just the deepest end of the bullshit. The thing is this crap used to work out for me in a weird way. Now it's just not anymore.
If it's possible I would actually like to know what the hell I am doing..........
I do want to do an online class ( I am hoping Max will put in a good word for me) but I was waiting for Zach's surgery date.
It's not canceled it's postponed. I got a call from the hospital and they will call me back to reschedule. I hate when I say ok I am going to wait for this or that and ............the waiting gets extended...... I have to learn to be more fluid with life. I was type A neurotic and I liked it better that way. Oh well.
Don't worry if I go MIA for a while..... I timed this surgery close and now that it has been delayed I may have to deal with this tooth trying to cut through the gums. I am going to try to get one of his doctors to pull some strings for us.
On the other hand so many things are getting better that I am willing for more good to come. ( as long as I don't crack the whip on myself the second we are not in the mist of hell. )
I just made of point of having fun. I am just having vacation envy.
I put some feelers out on a project and the main shark I work for ......well, I forgot his girlfriend is in the business too. Some dude with money keeps playing with them claiming he'll match funds......when he knows they can't get the rest of the money. Whatever, they keep wanting to keep projects for their big cross over deal. Actors eat up what little money they have to be held for a project but they won't sign a letter of intent or let you use their name to help raise money. Actors hate that........ It's just the deepest end of the bullshit. The thing is this crap used to work out for me in a weird way. Now it's just not anymore.
If it's possible I would actually like to know what the hell I am doing..........
I do want to do an online class ( I am hoping Max will put in a good word for me) but I was waiting for Zach's surgery date.
It's not canceled it's postponed. I got a call from the hospital and they will call me back to reschedule. I hate when I say ok I am going to wait for this or that and ............the waiting gets extended...... I have to learn to be more fluid with life. I was type A neurotic and I liked it better that way. Oh well.
Don't worry if I go MIA for a while..... I timed this surgery close and now that it has been delayed I may have to deal with this tooth trying to cut through the gums. I am going to try to get one of his doctors to pull some strings for us.
On the other hand so many things are getting better that I am willing for more good to come. ( as long as I don't crack the whip on myself the second we are not in the mist of hell. )
Thursday, April 05, 2007
WATCH THIS VIDEO AND A DONATION WILL BE MADE.
SAME FOLKS ON OPRAH TODAY!
What kind of World Do You Want
John Ondrasik- who is the lead singer of the music group Five for Fighting
has a charity where you make a video of 'what kind of world do you want"-
On his site he has made a few of his own personal choices & The charity Autism Speaks was one of them!
(Everytime someone downloads this video or a video you make- 49 cents goes towards the charity designated for each video)
The link below is the actual video for Autism Speaks- It is very BEAUTIFUL!- Towards the end keep reading the words-
It really is a world any parent that has a child with Autism would want..
In My Shoes I stole this from here the post and everything.
She is having some trying times with her little one with autism. So we are sending her some good wishes and prayers.
SAME FOLKS ON OPRAH TODAY!
What kind of World Do You Want
John Ondrasik- who is the lead singer of the music group Five for Fighting
has a charity where you make a video of 'what kind of world do you want"-
On his site he has made a few of his own personal choices & The charity Autism Speaks was one of them!
(Everytime someone downloads this video or a video you make- 49 cents goes towards the charity designated for each video)
The link below is the actual video for Autism Speaks- It is very BEAUTIFUL!- Towards the end keep reading the words-
It really is a world any parent that has a child with Autism would want..
In My Shoes I stole this from here the post and everything.
She is having some trying times with her little one with autism. So we are sending her some good wishes and prayers.
Wednesday, April 04, 2007
SET YOUR TIVOS
WEDNESDAY ECHOS OF AUTISM ON WORLD NEWS WITH CHARLES GIBSON
THURSDAY FAMILIES WITH AUTISM ON OPRAH
ZACHARY IS BATTTING 1000!
Yep, If you ckick go to my Jippyjabberchannel Zachary's Blinking Video just hit 1000 views. A STAR IS BORN!
He is working on a special response video to one of his favorite You Tubers. You'll have to wait and see......
GUILT
Some times I pretend like nothing is wrong. I believe it so much that I start bitching myself out for not being more successful. I am such a fucking slacker. I was proabably never going to amount to anything anyways. I just haven't gotten it done. Why do I still live here? Where are the vacation pictures? Zachary swimming with the dolphins. IS this all I can give him?
Do you think three Easter baskets will make up for it? He picked out three baskets when he saw them. I realized then that he won't have easter with his cousin. I didn't want to fight with him in the store. The truth is I wanted him to win even if we did. He knows almost every present he ever gets. I know It's sounds so great, "The Nanny." The truth is he is a two person job and I rarely leave them alone. I can't risk loosing her.
He is freaking out now and I am in a mode. How can I blame this on me? I recognise this search mode going through my mind and red lights start flashing. I'll go comfort him.
I know we are OK. Oh the snake of guilt the slithering fuck. I let my gaurd down. It's those lonely easter baskets. I'll think of something ........now that I have named the beast. He likes those plastic eggs. I can hide them and he'll find gummy lifesavers in them and maybe some hot wheels. He will be surprised, maybe even looking for a bunny somewhere. Sometimes it's not so bad when I pretend like nothing is wrong.
WEDNESDAY ECHOS OF AUTISM ON WORLD NEWS WITH CHARLES GIBSON
THURSDAY FAMILIES WITH AUTISM ON OPRAH
ZACHARY IS BATTTING 1000!
Yep, If you ckick go to my Jippyjabberchannel Zachary's Blinking Video just hit 1000 views. A STAR IS BORN!
He is working on a special response video to one of his favorite You Tubers. You'll have to wait and see......
GUILT
Some times I pretend like nothing is wrong. I believe it so much that I start bitching myself out for not being more successful. I am such a fucking slacker. I was proabably never going to amount to anything anyways. I just haven't gotten it done. Why do I still live here? Where are the vacation pictures? Zachary swimming with the dolphins. IS this all I can give him?
Do you think three Easter baskets will make up for it? He picked out three baskets when he saw them. I realized then that he won't have easter with his cousin. I didn't want to fight with him in the store. The truth is I wanted him to win even if we did. He knows almost every present he ever gets. I know It's sounds so great, "The Nanny." The truth is he is a two person job and I rarely leave them alone. I can't risk loosing her.
He is freaking out now and I am in a mode. How can I blame this on me? I recognise this search mode going through my mind and red lights start flashing. I'll go comfort him.
I know we are OK. Oh the snake of guilt the slithering fuck. I let my gaurd down. It's those lonely easter baskets. I'll think of something ........now that I have named the beast. He likes those plastic eggs. I can hide them and he'll find gummy lifesavers in them and maybe some hot wheels. He will be surprised, maybe even looking for a bunny somewhere. Sometimes it's not so bad when I pretend like nothing is wrong.
Tuesday, April 03, 2007
Autism Acceptance
IF YOU HAVE NORMAL KIDS...DON'T LET THEM BE AFRAID....OUR KIDS NEEDS FRIENDS.. THIS BOOK CAN HELP..
Autism Acceptance
RIPPED-
The Autism Acceptance Book is an interactive, educational, and character-building book that introduces children to the challenges faced by people with autism while also supporting their personal journey toward appreciating and respecting people's differences.
This book offers educational information, conversation-starters, and engaging exercises that invite children to "walk in someone else's shoes" as they learn to treat others the same ways they would like to be treated themselves.
Autism Acceptance
SHOUT OUT
To a very special Girl Scout troop! They are "BUDDIES" to an AUTISM CLASSROOM! You girls are SWEET! I'll never forget!
IF YOU HAVE NORMAL KIDS...DON'T LET THEM BE AFRAID....OUR KIDS NEEDS FRIENDS.. THIS BOOK CAN HELP..
Autism Acceptance
RIPPED-
The Autism Acceptance Book is an interactive, educational, and character-building book that introduces children to the challenges faced by people with autism while also supporting their personal journey toward appreciating and respecting people's differences.
This book offers educational information, conversation-starters, and engaging exercises that invite children to "walk in someone else's shoes" as they learn to treat others the same ways they would like to be treated themselves.
Autism Acceptance
SHOUT OUT
To a very special Girl Scout troop! They are "BUDDIES" to an AUTISM CLASSROOM! You girls are SWEET! I'll never forget!
Monday, April 02, 2007
APRIL IS AUTISM AWARENESS MONTH
Jennifer,
I want to let you know that the audience of 90 physicians (mostly family
practitioners and pediatricians) were absolutely riveted to the sceen when I
showed those brief clips of your son! I am absolutely sure that those are
images that they will remember forever. And I am also sure, by the looks on
their faces as well as the questions asked of me afterwards, that my purpose was
served - in fact, I saw lots of nodding in the audience when I told them that I
do not think these children should be assessed and responded to in the same way
as other,non-autistic children, when they aggress, including self aggression.
I have to say that my experience dealing with families of children with autism
is that these are - you are - the most generous of parents, really trying to
help educate others. That is a wonderful effort on your part.
I am really humbled and honored to be even a small part of that.
thanks again, so very much.
Debra
Dr. Debra found the videos of Zachary on You Tube and contacted me for permission to use them.
Jennifer,
I want to let you know that the audience of 90 physicians (mostly family
practitioners and pediatricians) were absolutely riveted to the sceen when I
showed those brief clips of your son! I am absolutely sure that those are
images that they will remember forever. And I am also sure, by the looks on
their faces as well as the questions asked of me afterwards, that my purpose was
served - in fact, I saw lots of nodding in the audience when I told them that I
do not think these children should be assessed and responded to in the same way
as other,non-autistic children, when they aggress, including self aggression.
I have to say that my experience dealing with families of children with autism
is that these are - you are - the most generous of parents, really trying to
help educate others. That is a wonderful effort on your part.
I am really humbled and honored to be even a small part of that.
thanks again, so very much.
Debra
Dr. Debra found the videos of Zachary on You Tube and contacted me for permission to use them.
Sunday, April 01, 2007
I DECIDED TO CUT MY HAIR LAST NIGHT
I don't know why I do this. It's never been THIS bad!
Can this be fixed? Are Bangs in style?
I don't know why I do this. It's never been THIS bad!
Can this be fixed? Are Bangs in style?
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